a great and noble life

I sit in the sanctuary. It is Yom Kippur, the holiest day of the year on the Jewish calendar. The year when even the least observant Jew can be seen in a synagogue.

I am not the least observant Jew… Not really possible with a husband who is studying to become a rabbi. Not really possible with the amount of Jewish tradition I was raised with. Not really possible with Polish grandparents who survived the Holocaust. Not really possible with the number of Jewish food calories I have consumed in 38 years.

And yet it is still somewhat a surprise to me that I am there, in this synagogue, following along with this kind of service. It is a traditional Reform Jewish service. The prayer book – Gates of Repentance, special for this day of atonement – talks of

God as Lord,

God as male,

God as judging,

God as forgiving.

I can’t quite bring myself to recite along during the call and response. I can’t bring myself to say, God, oh Lord… out loud.

This is not how I relate to God, to Source, to all that is around and within me. This is not how I connect to my divine essence. Not in this language.

My “God” is not separate from me.

My “God” is not in charge, deciding what I will receive and what will be taken away, when I will struggle and when I will overcome.

My “God” does not judge or punish me.

My “God” does not care whether I fast on Yom Kippur, or that my fast today included drinks of water and kombucha, that my day of atonement included a trip to Whole Foods and time sitting on my couch writing in my journal and reading a (non-Jewish) book.

Then I find this in the prayer book during the afternoon service: 

This is the vision of a great and noble life:

To endure ambiguity and to make light shine through it;

To stand fast in uncertainty;

To prove capable of unlimited love and hope.

And it resonates inside.

Hmm… A great and noble life as one that is lived as well as possible in spite of its precariousness, in spite of our fragility. Amid the fuzzy blurred boundaries that keep changing on us without warning, and rugs that are pulled out suddenly from underneath us.

I have proven capable of unlimited love and hope. Each day I surprise myself that I continue to feel it even more. In spite of the uncertainty that comes with knowing that things can completely fall apart and come crashing down again and again.

I never before thought of my ability to bounce back as being a quality of a great and noble life. I never before related to survival that way. Yet survival is what it is, isn’t it? Isn’t that what I’ve been doing? Surviving? 

Or perhaps I have actually… been… thriving…?

***

It is later in the afternoon and the yizkor memorial service has begun. The mood is quiet and solemn and the passage is about our finiteness, words about being on the road towards death from the moment we are born. (I close off some when I hear the words birth and death in the same sentence.) Again I start leafing through the prayer book, unsatisfied with the gloom and doom.

I find this: 

May the pains of past bereavements grow more gentle;

Indeed, let them be transformed into gratitude to our dear ones who have died

And tenderness to those who are still with us.

I was so lost at this time last year. I was so angry… at everything and everyone. I cried through the entire day at our warm and wonderful Renewal congregation in Berkeley, surrounded by friends who were there at every turn to hug me and sit with me or leave me alone outside if I needed that. I didn’t fast. I felt no obligation, no inspiration.

I felt no connection to this day, so soon after Tikva had died. All I could do was picture her spinning in circles in a white dress, dancing to the music, a year later. The two of us together in a parallel universe where she had continued to live.

All I could do was cry an endless stream of angry lost tears.

Now, a year later, the pain has grown more gentle. I think of Tikva with gratitude for the gifts of hope and love she gave me, for the compassion space she cracked open and expanded within me. For asking me to love her in a way I had never before known I could love, for teaching me that hope never completely goes away, even when everything feels lost

Or finite.

And I think of Dahlia, who daily stretches my capacity for patience, who demands my presence, my tenderness like no one else can, who reminds me to laugh in my most frustrated and exhausted moments, and I feel gratitude for both of my daughters, the deepest kind of gratitude for the way things are.

Just as they are. 

***

I surprise myself, that I can feel this lightness, especially today. On this day that for many is solemn and serious, reflective and laden with guilt needing to be cleared and asking for forgiveness. I surprise myself that I feel anything other than rebelliousness about Yom Kippur, this holy day I was determined to mostly blow off this year.

Then I woke up this morning and felt peaceful, held. By an energy that is comforting, serene, gentle. It didn’t matter that I was not spending the day with my community back in California, but instead in my house and at the grocery store and at services that felt mostly foreign.

It didn’t matter that I hadn’t asked anyone’s forgiveness, nor made any big plans for ways I wanted to grow and expand in the coming year.

All that mattered was that when I stepped outside to watch four monarch butterflies and two fat bumblebees holding for dear life to the white flowers as the wind blew them furiously around, 

I felt connected… to all of it.

Connected to the wind, to the smells in the crisp fall air, to the bees and the butterflies, to the light streaming through their gold-orange wings…

Connected to Tikva. 

Connected to my essence, the most pure and true part of me.

Connected to a deep knowing inside me that I can and will continue believing in hope and love.

Perhaps the makings of a great and noble life are that simple.

.::.

And you? How do you connect with the part deep inside that is most entirely you? Is there something bigger that helps you feel connected? How have you stretched and expanded through losing your child? What makes you recoil, contract? What helps you to feel you are thriving? What are the makings of your great and noble life? 

anything is possible

This afternoon I spontaneously took Dahlia to the de Young Museum in Golden Gate Park. They’re having a weeklong exhibit called Bouquets to Art, and boy was it gorgeous. As if the museum wasn’t beautiful enough, this week it is adorned with flower arrangements created to depict or appreciate different works of art throughout the place. And… I’d forgotten the two traveling exhibits that are currently there: Andy Warhol and Yves St. Laurent. Talk about eye candy… and color!

Someone recommended to me a few months ago, “Go look at art. Walk in a park surrounded by flowers. Go see something beautiful.” They were right…

Today I fed my soul.

Today I refilled my leaky well.

Today I stroked my tired heart with softness and vibrancy and beauty.

Today I sat on a cushioned couch under a disco ball, watching Dahlia skip and dance and hop among the moving lights and shapes that circled the floor. As if she were a work of art herself, an ever-changing statue in motion. A dancer. A happy child simply playing. Making others around her smile. Filling me up.

We flitted about, surrounded by mannequins dressed in Yves St. Laurent gowns, and Dahlia pointed at each one and said, “Mommy, this one’s me and this one’s you. This one’s you and this one’s me. Look, Mommy… Wow! This one’s my favorite…” Delicious. The bright colors, the sparkles, the eccentricity of exaggeration, just for the sheer beauty of it.

Today I loved my daughters, the vibrant living one dancing before me, and the spirit one whom Dahlia said she saw in the mist that was watering the grass outside. “There’s Tikva!” I loved them both from a bright and full place within me.

And I thought about possibility – the word I have been swishing around in my mouth for a while. Surrounded by all that color, all that imagination, all that life – however fleeting… there’s a reason the flower exhibit only lasts a week – I was able to feel the possibility of what is ahead with greater depth than before.

Because if a person can make art so bright, so gorgeous, isn’t anything possible?

If a child can be born as vibrant as Dahlia, or as fragile as Tikva, isn’t anything possible?

If we can move halfway around the world to try with all our hearts to help our baby live, is there anything we can’t do? If Tikva chose me as her Mama, how can my life be without meaning?

Possibility is tasty.

I have always been an optimist, even in my darkest times. I have had more hard times than many in my 37 years, so my eternal optimism sometimes surprises me. I must have been born this way, it just seems to be my nature – my spirit is a positive one. Maybe I just learned early on that if it’s possible to feel really bad, it must be possible to feel really good, too. I’ve always believed that you have to go through it to get through it. Maybe it’s true that knowing deep sorrow is the only real way of glimpsing profound joy. I don’t know… Maybe it’s not important to understand why the glass is half full through my eyes, but rather to be thankful for that part of who I am.

But back to possibility…

How do I reconnect with that sensation after so much possibility has been lost? How do I trust the possibility of happiness, fulfillment, even hope… after so much has been taken away? After so much letting go? How do I hold the likely possibility that I will one day birth and hold another healthy living child, and that it will be easy and smooth and real?

How?

I just do. Every day I make that choice. Every day, even when I’m not feeling it deep inside – and I have plenty of those days, too – I am choosing possibility. I’ve learned in my later thirties that I can actually choose what I focus on, that I am capable of readjusting my lens if what it is focused on isn’t making me feel good. It doesn’t always work perfectly, but the intention is there. Not an intention to always feel good – because sometimes I just need to cry and feel like crap. But a desire to remember that possibility is always there.

Before she was born and during her very short life, Tikva became such a symbol of hope, not just for me and my family but for so many others who followed her journey. Since her journey took her to another realm of existence, I have asked myself often, “How do I hold onto hope when hope has been lost? And how do I build new hope, new promise, new possibility?”

The thing is, possibility is always there, and hope is a thing with shallow roots but a powerful desire, always seeking to be replanted, to rise back up through the soil towards the moisture and the light. Towards beauty. Towards possibility. Towards love.

I have to admit that I didn’t find possibility at the museum. I actually went there already feeling it deep inside me. My eyes were open to seeing it, and there it was. The magic I encountered there reaffirmed promise, gave me permission to hope, showed me proof that more beauty is possible. And I was reminded of the incredible beauty that exists in the very short life of my little girl. I stood before a soft all-white arrangement of flowers and loved it completely because it reminded me of Tikva.

And Dahlia pointed at a stem of orchids hanging down from it and said, “That flower. That’s Tikva.”

Even though she’s gone, she’s never really gone. For me, Tikva will forever be proof that anything is possible. Not because she overcame the greatest odds and lived a long healthy life, but because she was powerful enough to teach me hope and possibility.

And the deepest love imaginable.

.::.

How do you hold possibility? Where does it hide after the loss of your baby(ies)? Where do you find it? 

strength in the ashes

Angie of Bring the Rain brings our Are You There, God? It's Me, Medusa blogolympics to a close, rounding out a month of new voices that's left us all deeply moved, comforted and invigorated in the heart.

Angie lost her first child to miscarriage in January of 2002, and lost her fourth daughter Audrey Caroline shortly after birth on April 7th, 2008 due to conditions that made her incompatible with life. In her writing, Angie has shared what often feels like an intimate conversation between God and herself, a Christian walking the path of spirit-baby motherhood.

Speaking to the extraordinary response she received on her October 15th post to acknowledge the sisterhood (and brotherhood) of babyloss, she writes: "If you believe in Him tonight, you will know what it feels like to trust completely in the One who holds you high above the discernible ground. You know that it isn't always perfect, and it isn't always easy. It is entirely possible that something will give way and you will fall, head first into the ache that is this life.

But on the other hand, you'll never know unless you jump."

"Jacob, where do you find the strength to carry on in life?"

"Life is often heavy only because we attempt to carry it," said Jacob. "But I do find a strength in the ashes."

"In the ashes?" asked Mr. Gold.

"Yes," said Jacob, with a confirmation that seemed to have traveled a great distance. "You see, Mr. Gold, each of us is alone. Each of us is in the great darkness of our ignorance. And, each of us is on a journey. In the process of our journey, we must bend to build a fire for light, and warmth, and food. But when our fingers tear at the ground, hoping to find the coals of another's fire, what we often find is the ashes.

And, in those ashes, which will not give us light or warmth, there may be sadness, but there is also testimony. Because these ashes tell is that somebody else has been in the night, somebody else has bent to build a fire, and somebody else has carried on. And that can be enough, sometimes."

—Noah benShea

I was about 18 weeks along when they told me she wouldn't live. After the diagnosis, the doctor asked me how I felt, and I replied, "My Jesus is the same as He was before I walked in here." I believed it. I still believe it.

But it hurts.

We decided (against medical advice) to carry her as long as possible because we wanted to leave room for God to perform a miracle. I spent the next several months answering difficult questions from strangers about when my baby was due, what we were naming her, whether or not she would have red hair like her sisters, what were we thinking to have another baby when we already have three daughters aged 5 and under. The sweet shape of my growing tummy belied the truth. She wasn't going to be ours. Not the way we wanted her to be.

I spent many, many nights in tears of panic and desperation. I realized something about my faith that I hadn't known up until that point in time: I really believed in Him.

It's one thing to say it. It is another thing entirely to do it.

I found myself curled up in bed after the kids were sleeping, talking to the Lord like He was a friend sitting beside me. I told Him about Audrey and the way I loved her. I told Him I didn't think I could live without her, that I wanted it to be a dream. He never failed to meet me where I was, when I had nothing else that spoke to me. And so, in the darkest season of my life, I found myself falling head over heels in love with the God who held her life in His hands.

I think that as Christians, we are sometimes tempted to believe that if our faith is where it is supposed to be, we won't fear, we won't be disappointed, we won't mourn what we have lost in this life. Well, I am here to tell you that I have been through the worst of it, and it was, well, the worst of it. I didn't walk around life exclaiming my joy about the impending birth (and death) or my daughter. I remember driving home from (of all places) a baby shower for a good friend of mine. The rain was splashing all over my car and I started screaming and pounding the wheel. "You can FIX this Lord. You can heal her! DO IT! HEAL HER! HEAL HER!!!"

He talked to me about Who He was, and He led me to Scripture that I could press into. He earned in me a faithful follower, and in return, He taught me the power of ashes.

On April 7th, 2008, we met our sweet Audrey. She went to be with the Lord after about 2 hours, and it was bittersweet to say the least. We studied her bellybutton, the bottom of her feet, her rosebud lips. We held her, sang to her, prayed over her. We loved her as if we had always known her, and then, in the blink of an eye, she was gone.

We held her for many hours after she died, and I would be lying if I said that I didn't have it out with God during that time. I would be lying if I said I haven't had it out with Him every day since then. Yes, I believe. Absolutely. I don't know how to not believe.

But I don't understand.

I want you to know that if you have made your way to this site because you have walked across a cemetery to spend time with a child you cannot parent, I am sorry. If you have miscarried so early that you don't even have a physical marker of your sweet baby, I am sorry. If you are a mother who is without your daughter or your son tonight, I want you to know that I am praying for you as I type these words, and I am broken because I know the hurt of an unrealized dream.

We may not believe in the same God, and we may not attend the same church. We may not ever meet in this life, but I want you to know that from the deepest part of me, I am sorry that your hands have had to dig deep into the earth alongside mine, desperately searching for coals. We are united in the most undesirable of ways, but tonight, I am grateful to have women who remind me that I have permission to feel the way I feel, and above all, whisper in the dark of night, You are not alone.

And sometimes, that can be enough.

...and provide for those who grieve in Zion-
to bestow on them a crown of beauty
instead of ashes,
the oil of gladness
instead of mourning,
and a garment of praise
instead of a spirit of despair...

Isaiah 61:2-3

opening windows

David Spinrad of The Unorthodox Rabbi is a rabbinical student at Hebrew Union College, the seminary for the Reform (progressive) Jewish movement, and a personal trainer living in San Francisco. He is the husband of Gal of Growing Inside, whom we've honoured here at Glow. In the words of big sister Dahlia, Dave and Gal have one 'princess daughter' and one 'angel daughter'. Their youngest, Tikva, passed away in August 2008 of a diaphragmatic hernia diagnosed during Gal's pregnancy.

Dave joins our Are You There, God? It's Me, Medusa gathering with this caveat: "Even though I am a rabbinical student, I cannot promise that my perspective will be entirely Jewish. And even though I am a man, I cannot promise you my voice will be male. I will promise you that whatever I contribute will be a reflection of me, uncompromisingly honest and from the heart."

Do I really want to be a part of the Dead Babies Club? Can't I just do this myself, keep my feelings and perspective away from anyone or anything that I feel like I have to defend against?

I could be in the park right now. Sun, shining down. Me, dreaming up. Blue sky, above. Green grass, below. Is not this the purest connection to God? A clear head, feeling no differentiation between me and God and no distance from Source?

Sounds great.

Who are you kidding?

I hear You. It actually sounds boring.

I do like this ride, although I don't know about the DBC.

Afraid? Why make life experience conditional? Why not dive into all of life?

This is the Jewish way.

I did come here to mix it up. I came for experience and expression. I am alive to explore. I live to be here, desire there, find peace in the here and enjoy the journey to there.

But where I am is no longer here and not quite there. A liminal state of being. Can I enjoy being neither here nor there? Can I trust where I am even if I don't understand it?

You can, if you let yourself be where you are.

Does this lead me to becoming a better rabbi, too? More questions than answers. My response to a person saying, "This will make you a better rabbi," is "I would settle for becoming eighty percent of the rabbi losing Tikva will make me," is a lie.

I will settle for nothing less than the fullness of life's experience. Tikva's passing is, on a feeling level, exactly the depth of life I desire. I wouldn't have asked for the conditions in a million years, but the 'why' of it isn't for me to answer. I can give that question over to God simply because there is absolutely no way for me come to a satisfactory answer. I'm totally off the hook for that one, and making myself crazy or miserable isn't my way.

It unsettles me to admit this, but when I take the labels of 'desired' and 'undesired' off the piles of life, I have so much more freedom in my life.

In the Torah, upon sending Abram upon the adventure of his life, God says to him, 'Lech lecha'. In English, it translates to, 'Go for yourself'. Or, we can translate it as, 'Go to yourself'. Every journey to ourselves is for ourselves. And Tikva's life gives me gifts for my journey to self that I am only beginning to understand.

Whether I want to be or not, I have a lifetime membership to the Dead Babies Club. Since I'm stuck here, would you mind if we open up a few windows? And while we grieve, I'm going to throw out a few thoughts.

Losing a child is not my whole life. Do you know how uncomfortable I am that there are all these people out there who only know me from this experience, only know me as Tikva's dad? I am so much more, way, way more than just her dad. I am made of the same stuff as sunshine between tree branches and nothing less than the moon rising above the Red Sea.

I am a part of God. Without me, there could be no You. The Sh'ma, whose words carve the foundation stone of Judaism, demands my particpation in comprising God, declaring: "Listen, you who wrestle with God, the Unity that is our God, God is One." You need us. And we, as a part of You, are eternal.

So why so much attention on this one little soul, this little piece of God consciousness who projected herself into a body that gave her exactly the experience she, and our collective consciousness, desired? Because if we're going to give her all this attention, let's look at the glory of the life she lived.

How many people do in eighty years what Tikva did in eight weeks? How many of us inspire hope, real hope, real oh-my-God-oh-my-God-oh-my-God hope in our lives? Tikva doesn't only mean ‘hope' in Hebrew, Tikva is hope. That's what she was and that's what she is. And I got to be the parent of the physical manifestation of the feeling of hope. I got to hold Hope in my arms.

And you want me to mourn that? Are you kidding me?!

And yet, I grieve. And that makes me feel so mortal. So ordinary. So. There is no escaping it. There is no winning in life and no losing in death, only love and our capacity to give and receive it.

Tikva's middle name is Ahava, ‘love' in Hebrew. And the only love worth a damn is unconditional love. It's a real thing and Tikva gave me the chance to feel it. I'd heard all about unconditional love in the past, but I was never able to separate the message from the messenger. I always suspected that deep down inside the person yammering on about unconditional love was really trying to set himself up to get a piece of ass. Nothing wrong with that, but don't kid yourself about unconditional love. Until you've lived it, you can't know it. And the separation between those who can grasp the concept and those who have held the feeling is a yawning chasm that nothing but experience can bridge.

Until you love your child without ever knowing whether or not you'll ever get to hold her, you don't know unconditional love.

Until your love for your child is greater than your need for her to live even one more day with anything less than the dignity she deserves, you don't know unconditional love.

I grieve the loss of Tikva, but can't and wouldn't change a thing. It doesn't all make sense to me and it feels like it never will, but in Man's Search of Meaning, Victor Frankel wrote this from the concentration camp in which he was held:

The last freedom is ours - to choose one's attitude in any given set of circumstances, to choose one's own way.