our bodies, grief, and healing

Today's post is an interview with my chiropractor, Dr. Jenny Dubisar. I have felt that my pregnancy with Ferdinand brought me in touch with much beauty and grace, and Jenny is one of those graceful gems. She is the sweetest soul ever, I am so lucky to have met her and be in her care. She has answered the interview questions in great detail, even when I gave her such little time and at a time when her schedule is choked full. She has really put her heart into the answers, you will find grace and compassion sparling and glittering throughout her answers.

Also, note that Jenny practises a type of chiropractic technique known as Network Spinal Analysis, or Networking. It is different from the traditional chiro technique, so much more gentler and relaxing. Jenny explains beautifully about her work and the relation between grief and chiropractic health. I am deeply thankful for the time she took to explain and share.

Read More

my body electric

It’s time. It’s spring. It’s time to plant.

I take it out of the freezer where it’s been since last June, since Tikva’s birth.

I put it in the refrigerator and after a few days it has thawed.

I take it out again, open the top of the plastic container, and pour it into a bowl.

I look down on this magnificent thing – deep, dark red blood, a mass of veins, a symbol of life.

Tikva’s placenta, a few inches of her umbilical cord, and the amniotic sac that surrounded them and my Baby Girl. Incredible.

I need to cut off a piece of the placenta and put it in a sterile container. It’s going to a doctor who is researching the possible genetic causes of congenital diaphragmatic hernia. She may be able to isolate Tikva’s DNA from her placenta and include her in the study. Maybe tell me something that might explain… something. Perhaps. Before losing that opportunity, it’s worth a try.

So I dig my fingers into its softness, marvel at every inch.

My body made that. My body made that for my Baby Girl! That which nourished her while she was inside me, helped her grow. I can’t help but wonder at how amazing that is – it is not diminished by the fact that something still went awry as she grew inside me. In this beautiful thing in my fingers, I see what my body did for Tikva – I see how hard my body worked to nourish her and keep her well.

I cut off a small piece from one side, then another piece. I take a piece of the umbilical cord, and some of the blood, and I put them all into a small sterile container. Tikva’s DNA in a plastic vial. The rest back in the big container, back in the refrigerator. My hands under the flowing water, I watch the red of the blood run down the drain.

A few days later I plant the rest of the placenta underneath a new rosebush – golden yellow and orange roses with some pink. The best kind of fertilizer to help them grow and blossom. The roses are going to smell amazing when they bloom. The colors make me think of Tikva… warm and delicious and delicate and soft. So sweet.

photo by sleepingbear

I can’t help but be amazed at what my body is capable of – both the magic and the messy stuff. I’ve struggled with illness, with being overweight and underweight, with the constant practice of learning to love my body in spite of the jiggle and flab and blemishes. I haven’t always treated my body like a temple… I certainly haven’t always loved my body unconditionally.

But the three times I was pregnant I treated it like the Taj Mahal.

I took for granted the magic when Dahlia grew perfectly inside me and was born with relative ease. I was stunned with disbelief – Me? No way! – when I miscarried at ten weeks a few years later. Miscarrying felt like small potatoes when I learned that Tikva had a potentially life threatening birth defect – My baby? How can that be?

I’m honestly not sure what to make of it all – all that my reproductive body has created. I have planted two placentas: Dahlia’s with fuchsia colored dahlia tubers and Tikva’s with orange yellow roses. I planted the remains from my miscarriage with yellow dahlias.

Lots of flowers that are now in other people’s gardens.

One radiantly healthy living child asleep in my quiet home.

My slightly deflated spirit housed in this familiar almost-38-year old body that is both charged by what it is capable of and apprehensive about all that can go wrong.

My body actually feels strong, healthier overall than I have felt in years. It also feels – and certainly looks – older. I can’t say I really thought very intensely about being in my late thirties or even really noticed my aging body until this year – until I lost Tikva. It’s like someone polished the mirror and held it up to my face and said,

See? This is you. You are older. You have been through a lot. You are now even more weathered than you thought you could be.

Remember the movie Fame from 1980, at the very end when they do their senior performance and sing and dance all together…

I sing the body electric. I celebrate the me yet to come. I toast to my own reunion when I become one with the sun.

I sing the body electric. I glory in the glow of rebirth. Creating my own tomorrow when I shall embody the earth.

And I'll look back on Venus, I'll look back on Mars and I'll burn with the fire of ten million stars. And in time, and in time we will all be stars.

That song has been in my head the past few days as I have checked in with my own body electric. As I have thought about the possibility of rebirth after loss. About the kind of tomorrow I want to create – if indeed some of the creation is up to me.

I have been talking to my body, assuring myself that trust is still there between us – that body and I still believe in each other. I have felt pangs – my eyes have moistened – thinking about how incompatible with life Tikva’s beautiful body was. I have asked so many times,

What does it all mean? Why does it work only sometimes?

I have more questions than answers, of that I am sure. Yet I still feel like I have a lot to celebrate about my body…

My body that has given life, however fragile.

My body that is the only vessel I get this time around for my mighty and sometimes weary soul on this mysterious winding road.

My body that is – like Tikva’s – perfectly imperfect. Or is it imperfectly perfect?

I feel tremendous gratitude for my body electric – and the force of energy it both contains and creates.

.::.

What are you thankful for about your body? What brings you awe? What are you inspired to create when you look in your mirror?

This post is a part of The Body Shop at Glow in the Woods -- a month of themed reflections and memes that explore what we do in an effort to occupy these physical selves with grace after babyloss.

anything is possible

This afternoon I spontaneously took Dahlia to the de Young Museum in Golden Gate Park. They’re having a weeklong exhibit called Bouquets to Art, and boy was it gorgeous. As if the museum wasn’t beautiful enough, this week it is adorned with flower arrangements created to depict or appreciate different works of art throughout the place. And… I’d forgotten the two traveling exhibits that are currently there: Andy Warhol and Yves St. Laurent. Talk about eye candy… and color!

Someone recommended to me a few months ago, “Go look at art. Walk in a park surrounded by flowers. Go see something beautiful.” They were right…

Today I fed my soul.

Today I refilled my leaky well.

Today I stroked my tired heart with softness and vibrancy and beauty.

Today I sat on a cushioned couch under a disco ball, watching Dahlia skip and dance and hop among the moving lights and shapes that circled the floor. As if she were a work of art herself, an ever-changing statue in motion. A dancer. A happy child simply playing. Making others around her smile. Filling me up.

We flitted about, surrounded by mannequins dressed in Yves St. Laurent gowns, and Dahlia pointed at each one and said, “Mommy, this one’s me and this one’s you. This one’s you and this one’s me. Look, Mommy… Wow! This one’s my favorite…” Delicious. The bright colors, the sparkles, the eccentricity of exaggeration, just for the sheer beauty of it.

Today I loved my daughters, the vibrant living one dancing before me, and the spirit one whom Dahlia said she saw in the mist that was watering the grass outside. “There’s Tikva!” I loved them both from a bright and full place within me.

And I thought about possibility – the word I have been swishing around in my mouth for a while. Surrounded by all that color, all that imagination, all that life – however fleeting… there’s a reason the flower exhibit only lasts a week – I was able to feel the possibility of what is ahead with greater depth than before.

Because if a person can make art so bright, so gorgeous, isn’t anything possible?

If a child can be born as vibrant as Dahlia, or as fragile as Tikva, isn’t anything possible?

If we can move halfway around the world to try with all our hearts to help our baby live, is there anything we can’t do? If Tikva chose me as her Mama, how can my life be without meaning?

Possibility is tasty.

I have always been an optimist, even in my darkest times. I have had more hard times than many in my 37 years, so my eternal optimism sometimes surprises me. I must have been born this way, it just seems to be my nature – my spirit is a positive one. Maybe I just learned early on that if it’s possible to feel really bad, it must be possible to feel really good, too. I’ve always believed that you have to go through it to get through it. Maybe it’s true that knowing deep sorrow is the only real way of glimpsing profound joy. I don’t know… Maybe it’s not important to understand why the glass is half full through my eyes, but rather to be thankful for that part of who I am.

But back to possibility…

How do I reconnect with that sensation after so much possibility has been lost? How do I trust the possibility of happiness, fulfillment, even hope… after so much has been taken away? After so much letting go? How do I hold the likely possibility that I will one day birth and hold another healthy living child, and that it will be easy and smooth and real?

How?

I just do. Every day I make that choice. Every day, even when I’m not feeling it deep inside – and I have plenty of those days, too – I am choosing possibility. I’ve learned in my later thirties that I can actually choose what I focus on, that I am capable of readjusting my lens if what it is focused on isn’t making me feel good. It doesn’t always work perfectly, but the intention is there. Not an intention to always feel good – because sometimes I just need to cry and feel like crap. But a desire to remember that possibility is always there.

Before she was born and during her very short life, Tikva became such a symbol of hope, not just for me and my family but for so many others who followed her journey. Since her journey took her to another realm of existence, I have asked myself often, “How do I hold onto hope when hope has been lost? And how do I build new hope, new promise, new possibility?”

The thing is, possibility is always there, and hope is a thing with shallow roots but a powerful desire, always seeking to be replanted, to rise back up through the soil towards the moisture and the light. Towards beauty. Towards possibility. Towards love.

I have to admit that I didn’t find possibility at the museum. I actually went there already feeling it deep inside me. My eyes were open to seeing it, and there it was. The magic I encountered there reaffirmed promise, gave me permission to hope, showed me proof that more beauty is possible. And I was reminded of the incredible beauty that exists in the very short life of my little girl. I stood before a soft all-white arrangement of flowers and loved it completely because it reminded me of Tikva.

And Dahlia pointed at a stem of orchids hanging down from it and said, “That flower. That’s Tikva.”

Even though she’s gone, she’s never really gone. For me, Tikva will forever be proof that anything is possible. Not because she overcame the greatest odds and lived a long healthy life, but because she was powerful enough to teach me hope and possibility.

And the deepest love imaginable.

.::.

How do you hold possibility? Where does it hide after the loss of your baby(ies)? Where do you find it? 

the shape of grief

Upon Ferdinand's death was a big void. And I filled it with tears and words. I wrote and wrote and wrote, because I did not understand my grief and I had to figure it out.

There were many things repeated: the tears, the hollering, the pain, the hurt, the questions, the anger. Sometimes there were appreciation: gratitude, seeing the beauty.

But sometimes it seems my words were just not touching it, not describing the grief right. I really wanted to yell out to the world what it feels like, how it is, but it seems no matter how I string together the words, no matter how hard I contemplate the letters on my keyboard, there is a glass wall between me and grief. It seems I hold and cradle it, and I rock to sleep murmuring its name, yet it seems so intangible.

Then one day, my wonderful friend Leigh sent me this poem:

The Phoenix Again

On the ashes of this nest
Love wove with deathly fire
The phoenix takes its rest
Forgetting all desire.

After the flame, a pause,
After the pain, rebirth.
Obeying nature’s laws
The phoenix goes to earth.

You cannot call it old
You cannot call it young.
No phoenix can be told,
This is the end of the song.

It struggles now alone
Against death and self-doubt,
But underneath the bone
The wings are pushing out.

And one cold starry night
Whatever your belief
The phoenix will take flight
Over the seas of grief

To sing her thrilling song
To stars and waves and sky
For neither old nor young
The phoenix does not die.

~ May Sarton

and upon reading it, I broke down and cried. I realized that I have been trying to grope with the shape of grief, and perhaps denying what it was. The poem spoke to what I feared to face up to: I had died with my son.

And it spoke for what I desired: to live again.

Those words gave shape to my grief.

Often, it is when reading the blog of a fellow bereaved when I will chance upon a line that makes me say, or think, "Oh, my gosh, you just nailed it. You just said it for me, in a way more eloquent, and more beautiful, and more wide-eyed that I ever could."

Yet, it is not just the fellow bereaved who knew my grief, or who actively and compassionately sought to feel around this hole in my life, groping, tenderly touching, patiently trying to understand it all with me. At my Blessingway, organized by my two wonderful, incredibly awesome friends, a friend read the following poem during the session in which we all honor my son Ferdinand:

 

When in the paling darkness of the lonely dawn
you stretch out your arms for your baby in the bed,
I shall say, “Baby is not there!”–mother, I am going.

I shall become a delicate draught of air and caress you;
and I shall be ripples in the water when you bathe,
and kiss you and kiss you again.

In the gusty night when the rain patters on the leaves
you will hear my whisper in your bed,
and my laughter will flash with the lightning
through the open window into your room.

If you lie awake, thinking of your baby till late into the night,
I shall sing to you from the stars, “Sleep mother, sleep.”

On the straying moonbeams I shall steal over your bed,
and lie upon your bosom while you sleep.

I shall become a dream,
and through the little opening of your eyelids
I shall slip into the depths of your sleep;
and when you wake up and look round startled,
like a twinkling firefly I shall flit out into the darkness.

When, on the great festival of puja,
the neighbours’ children come and play about the house,
I shall melt into the music of the flute and throb in your heart all day.

Dear auntie will come with puja-presents and will ask,
“Where is our baby, sister?”
Mother, you will tell her softly,
“He is in the pupils of my eyes, he is in my body and in my soul.”

~ Rabindranath Tagore

Oh, how I trembled as those words left her lips. Those words made me realize how close my son is to me, and yet how far away he is. Those words reached deep and touched me where it is the most raw and most tender. My entire being shook, down to the very depth of my soul, because in those words, my grief had once again been given shape. Those words beautifully expressed my grief and longing. I read the poem many times over after the Blessingway and cried many good crys.

::::

How about you? How do you find shape to your grief?- thrugh your own writing, by reading? Do you have a poem that you return to often, be it for comfort, or just to give yourself permission to have a good, good cry?

that which remains

There are changes afoot in the lineup at Glow, and it's a right and wonderful thing. The contributors page now features a new category called 'glow emeritus' for founding writers whose lives and hearts have gathered enough momentum to bring them to new places from which to reflect.

Two new voices are joining our conversation here and we're thrilled. Today we bring you the first -- the wonderful Gal of Growing Inside. Gal, mother to princess Dahlia and angelbaby Tikva, gives us words that twist the kaleidoscope of this new view, inspiring us to see new colour in this unbidden and often bewildering spiritbaby parenthood. Let's make space by the fire and give her a hearty welcome, for we're deeply grateful to have her -- and you -- here with us.

 

Gray hair has settled in at my temples, clearly here to stay. Lots of it and more every day.

When I wear my hair down, the grays don’t show. But that means I can’t wear my hair back, and I like wearing my hair back. Especially when my hair is long, and right now I want to grow my hair long again. It’s been almost two years since it’s been long and right now I’m feeling the need for that again. Probably because I look younger, softer with my hair long, and right now I could use some of the lightness that comes with youth.

I don’t feel young anymore, not after the past year.

 

When I look in the mirror, I am struck by what I see in the woman looking back at me. She looks familiar, I recognize her but she is also new to me. She looks and feels older. Her eyes carry more sadness. She feels more grounded. Her gaze is more serious, her soul more honest. Along with the grays in her hair, her skin carries more fine lines, her forehead wears those not-so-subtle-anymore wrinkles that aren’t just there for a moment following an expression.

When I do yoga, the skin of my belly after carrying two babies hangs more limply from my core. My small breasts hang a little lower from nursing Dahlia and pumping for Tikva. My thighs… well, they’re just my thighs, jiggly and stretchmarked and still not my favorite feature, but the only thighs I get, so I continue to direct love their way in spite of it all. My skin is the skin of a 37 year old woman who has gained and lost weight rapidly (stretch marks), has had psoriasis most of her life (crusty itchy flaky scalp), had acne in college and still gets a zit or two at least weekly (blemishes and bumps), had shingles (discolored scars where the skin is numb from nerve damage). I still keep my nails short, 33 years after I started biting them, and I chew on the inside of my lips when I’m nervous, bored or focused.

I am full of imperfections, and in that, I am perfectly human. Alive, fragile, nervous at times, relaxed at others. I’m not five years old like my Dahlia, robust, skin smooth as milk, unblemished except for the daily preschool owie, radiantly healthy, at the very beginning of it all. She’s not brand new, and in losing her sister, she has been through more life experience already than most children three times her age. But still, everything is so new. And when I look at her I glow, and I also envy her, just a little, because everything is ahead. She can choose any fork in the road. She has nothing yet that she wishes she could undo.

There is something else I see when I look in the mirror, or when I close my eyes and feel what’s inside me. Like the hairs at my temples, I see the gray in my soul. It’s by no means my entire spirit that is gray, but there are wisps of gray there. Like the gray hairs, I don’t think they will go away, and they certainly can’t be covered up with color from a box. I imagine that I was born with a soul filled with color, and along the way of my life, I added more shades of brightness to my palette, and also introduced white to soften the brightness and black to darken it. I’m not sure if every single one of our souls begins as a full palette of bright colors, but this is what I see when I think of myself at my beginning this time around.

The past year dumped a pretty hefty can of gray paint on my spirit, with some drops splattering to pepper my temples. The gray mixed with the colors that were there – deep red and purple and turquoise and bright orangey yellow. The colors are still there now, just more pale, more subdued. The red is now burnt orange and pink, the purple more lavender, the turquoise now the color of an almost-black sky, the yellow more of an almost-there gold, like that last ray of light just before the sun sets.

I’m more tired now, more weary, and unexpectedly more peaceful. More accepting of what is, less rebellious against what I can’t control. Older and wiser, maybe?

This is what remains now, after losing my daughter. This is what remains after my heart was cracked open from sorrow and also from love. After some of the luster of my existence seeped out of me into the soil between blades of grass at my feet, to mix once again into the core of the universe from whence I came.

With the blemishes on my body and spirit, I am still here. Still vital. Still very much alive. More deeply connected to others, certainly more deeply connected to my most essential self. I have for the most part, most of the time, sloughed off what I no longer need – anxious worry about things that don’t matter, energy extended toward people who make me feel bad and petty things that aren’t good for me, time wasted on anything that is not at its core about love, genuine connection and compassion.

What remains is rougher than before, and also more refined. It’s the core that has always been but which has lost its smooth protective casing and is now more visible, more bare, more vulnerable… but mostly, more pure.

I never expected I would be looking at this woman and she would be me. It’s taking me some time to get to know her, but I do like her. I wish she didn’t have to go through all she’s been through to get here, but I find her quite beautiful. Not in spite of it all, but because of it.

.::.

What remains for you – of you – after losing your baby? What do you see in the mirror? Are you different than before? How do you feel about you now? Do you like what you see?

leavetaking

The little green box sits in a drawer now, a fine layer of dust collecting from god knows where. I do not open it anymore. I know he is not in there.

I thought I'd said goodbye long before I really did. The first time I held him, he was dying. And though I whispered, it's okay, it's alright little one, you can go, mama loves you, it's okay...I was only trying to ease the passage, make him feel safe since I could not keep him safe, since I could not keep him. But that was not goodbye...in my heart, I was still saying hello.

The last time I held him he had been dead twelve hours, lividity darkening one side of his small face. I waited for them to bring him to me, shy and eager as if before a date. I remember most the adrenalin taste of my anticipation, the leap in my heart even though I am a sane-ish sort and the joy I felt awaiting him feels ridiculous, even macabre in the recounting. But I did not believe he was alive: more that life and death were irrelevant, for a minute. It seemed enough that he was himself, and would be with me again. I think I thought that I wanted to say goodbye, though I couldn't have said those words aloud then...too maudlin. I think now that I was wrong, that goodbye was nowhere on my radar. I just wanted my baby. And I would want him with a keening ache for a long time after.

Our culture tells us that goodbye comes with death, or at the very latest with the last leavetaking of the body of the departed. The dead leave visible holes in the fabric of our lives, and we know them gone by the gaps.

But with babies, especially those who never came home at all, the thresholds are blurred. Waiting for a baby, a parent's life and selfhood shift to accommodate the coming addition...but the changes are private, woven in secret thread, invisible. When the baby dies, the leavetaking comes hand in hand with - or before, or in place of - that first magical hello, and all the anticipation and identity shifts of the parent-to-be are left hanging, shredded, irreconcilable with the fabric visible to the outside world. The usual rules of goodbye suggest that the absence of someone who was barely, in fact, present should be a simple thing.

But if it were, this corner of the internet would be a lonely place.

Pieces of goodbye crept up on me, crowded in. Each time I called him into being aloud, spoke the reality of his death, he slipped a little further from me. Each time realization fell and the obvious clicked: that I would never see what he would have looked like as a five year old, that I that there would never be a photo of all my children - if I eventually had other children - together. Each one tore at me, ripped open again the wound where all the futures I'd woven for us had been. Each one was invisible to the outside world, unremarkable to anyone who did not realize that my heart still held him whole long after his body had been relinquished to the fire. I knew he was gone, knew it in every part of me...my spread hips, my leaking breasts, my empty, searching hands. But it was the rituals of living without him that forced me to acknowledge what I knew, internalize it. Each time I moved forward without him, I let go a little. And I hated that. We had had so little time, he and I.

Then one day I opened the little green box to finger his small hat and when I held it to my face to breathe him in all I smelled was dust. No trace. And I sat, alert, surprised, as if suddenly realizing that he'd been gone a long time. I felt...odd, caught out...as if someone might be watching, as if I'd been discovered mothering a box.

are you there, little one?
I whispered.

No answer. And it all clicked into place.

I felt the shift deep inside me, just as I'd felt it all those months before as I waited for motherhood...the quiet sea change where what was once incomprehensible becomes, simply, who you are. Still a mother. To a child I'd never see again. There it was: goodbye.

And yet I felt him, too, closer then than I had in a long time, that brightness and sweetness of the moments holding him in my arms. you're gone, I said quietly. I miss you.

Did you say goodbye? All at once, or in pieces? What does goodbye mean, to you?

+++++++++++++++++++++++++++++++++++++++++++++++++++++++

this is my own goodbye, of a sort...my last post as a regular contributor here at Glow.

i will be reading, still, walking alongside, but almost four years out from Finn's death i feel another shift taking place in me and the urgency i long felt to write it all out has waned.  i still miss him, but that missing has become something i want to sit quietly with for awhile, and let other voices rise here to continue weaving our song of Medusa-hood, of love and grief.

thank you, all of you, for making this place a community.