Another festive season, the sixth without my daughter and I’m open about that fact that I stand on either side of it. Glad to be here with my son and devastated not to have my daughter. I will allow myself to feel the ache and desolation, but it will not ruin me like it hasn’t in Christmases past. I will stand, with my crooked spine and my slouched shoulders until this too passes. And it will.
Read MoreIt feels incredibly unsatisfying that it takes but a minute to list the essential facts and stats about him. I remember saying—to the first shrink that we saw after—that he was perfect, but he was dead. I think I want, I need that ‘but’. I don’t want A being dead to count as a part of who he is. Isn’t that why people have such a hard time talking to us about our children, because they intuitively see their deadness as their essence?
Read MoreThe day she died, I felt an ache in my heart. It intensified day by day month by month, and year by year it grew stronger. The ache was crippling and I curled up in a ball of hurt from which there was no escape. No amount of medication could ease the hurt. I feel it still, in my heart where she lives.
Read MoreI imagine Zia and I talking across a fire. She sits cross legged, smiling, a hot cup of cocoa in her hands. I am enthralled by her presence. I am the student, the listener. I imagine Zia and I hand in hand by the ocean. I look back and see our footprints, one bigger than the other. When I look back, she is gone.
Read MoreNow Wigglette will get a chance to play the role of the daughter I always wanted to raise. At first it was a comfort to know that some of that aching gap will be filled. Then came the pain from realizing that being my girl will no longer be something that is only yours. Once I get to witness her developing into a little girl, I fear that my sense of you will become even more obscure, and that I will be forced to leave some more of you behind. There will not be much left, I worry, beyond the knowledge that you were an infant and that I would have cared for you and that I still miss you deeply.
Read MoreMy son wants the brown bear in every picture. 'It feels like she’s my sister,' he says. The brown bear we love so much. The one that should have been hers. Merry Christmas Zia Bear. +++ To you, I won’t say Happy Holidays. I’ll say live. It's all we can do now. Live, rambling on about the ache in our hearts and souls. Ramble on the untold story. The incomplete tale. Hers, mine, ours.
Read MoreBereaved parents of lost babies and potential of all kinds: come here to share the technicolour, the vividness, the despair, the heart-broken-open, the compassion, and the other side of getting through this mess called grief.
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Parents of lost babies and potential of all kinds: come here to share the technicolour, the vividness, the despair, the heart-broken-open, the compassion we learn for others, having been through this mess — and see it reflected back at you, acknowledged and understood.
Thanks to photographer Xin Li and to artist Stephanie Sicore for their respective illustrations and photos.
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