Hug Thyself

The other day in the car my preset was broadcasting a program which I sometimes find interesting, but this week according to the  host was about "loving yourself."  And woah, for me that screams touchy feely and sounds as enticing as root canal.  So I found some angry music to hum to instead, but on the way home grew weary of heavy bass lines and forgot about the lurve fest and clicked back through just as the host was asking the guest to explain the difference between self-pity and self-compassion.  She paused, had to figure out which definition to chew through first, landed on self-compassion, and finally blurted out something to the effect of:

Look, everyone hurts.  Everyone experiences hurt.  Everyone suffers.

(I'm paraphrasing pretty heavily, but some of these catch phrases are not mine.)

The words flitted out while my fingers twitched on the dial.  Self compassion respects a common humanity, and the idea that life is difficult for everyone . . .  It's not self-focused, it assumes we're interconnected. . .  Suffering is part of the human experience, this IS normal, everyone experiences suffering.

Ultimately this should feel better than self pity because it means we're not alone.

Huh.

I don't toe that line very often anymore, the pity party one, with the self-absorbed balloons and memememe cupcakes (hey, I'll cry if I want to), but if I get close it usually doesn't take much to pull me back far away from the line with a sharp slap to the face.

It's all but impossible to stay wrapped in my bitter cocoon during a week like this, with a disaster of one sort, followed quickly by one of another, followed immediately by yet a third uncontemplated -- all upon one population.  It makes me realize how lowly and small my place is, and how contained my problems.  The losses there are so massive as to be unbelievable, unfathomable.  How the earth could move and then the sea could rise and make so many disappear within minutes is the stuff of fiction and space ships, not here, not on earth, where we watch television and twitter and eat chocolate and drive to the grocery store listening to the radio chatter about giving yourself hugs.

Sometimes it's hard to watch this hurt, to listen to people talk about how within minutes life changed forever.  I realize I told a similar story once, but now I feel nothing but sympathy:  that control I thought I lost?  I had both hands on the wheel compared to this, not to mention afterwards I got to retreat to my nice warm home while they're talking from a tent without water or food or family.  With the threat of nuclear meltdown to boot.  I wonder if what I felt was really pain at all.

When I hear of a new babyloss blog I try and find the time to go and leave a comment, and 99 times out of 100 I say, "You're not alone."  It's not much, but I hope the message conveys.  I remember feeling so bereft, so completely alone, as if I was the only person living on earth to ever undergo the freakiest of freakshows that ever freaked.  But here this lady is saying what I now know to be true:  not freaky at all, not remotely.  If Japan had a blog, this week I'd say, "You're not alone."  None of us are.  I just hope they hear me and know how sincerely I mean it.

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Writers use simile, it's a fact of life like taxes and death.  And when writers are trying to describe something that's happened to them, but not to many others -- like say, the death of an infant -- that hurt like a motherfucker and changed their universe in the blink of an eye, they grasp at any metaphor, any simile, any analogy to try and explain their pain.  I know I'm guilty, I've compared Maddy dying to a car wreck, I've discussed being stabbed in the heart, I've described the earth shifting under my feet, I'm sure I've even spoken of feeling flooded or even waves.  Tidal waves.

And this week I feel like an idiot because it's abundantly clear just looking at the headlines that I know nothing of feeling the earth move or the rush of a wave as high as a building crashing over my head.

Perhaps I shouldn't make comparisons to things I don't know about; losing Maddy was like hell I write, but I know nothing of that other than what I picked up in Inferno. (Although, if it does exist, I am headed there.  And will let you know as soon as I adjust to the lighting.  Call me!)  Am I doing a disservice to excrement saying I felt like shit?  I do know that I will pause before I speak of the auto accidents and volcanic ash and post traumatic stress disorder because maybe . . .  maybe it wasn't like that at all.  

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The other thing the guest lady on this radio program said before I moved on down the dial for something more uptempo was that in order to even begin to understand something like what happened in Japan, you need to be compassionate with yourself.  You need to acknowledge that it will hurt, that it's difficult to read about and adjust to, be kind to yourself as you abide with other's pain.  And I wondered, as I clicked away, about all the people who failed to even attempt to understand us:  who just moved on, and ignored it, and forgot it, and refused to talk about it.  The people who thought they were insulating themselves against our deadbaby juju by stepping a good ten feet away and using hand sanitizer.  The people who thought our lives were "too negative!" and they were doing them-positivity-selves a favor by not reaching out into the morass.  

But maybe this woman is right, and these people couldn't muster up enough kindness for themselves to open the door to someone else's hurt.  I'm not sure I have enough self-compassion to feel sorry for them, but it did make me think about them, even for just a few minutes.  I realized we aren't the pity parties, they are.  They're the self-absorbed ones, who blather on about wallowing and moving on.  We're not the one's who are alone, they are.  We're the normal, the ones with suffering, they're in denial.  The people who can sit and be with us and our pain?  Are truly good to themselves and understand compassion and its interconnectedness -- probably to such an extent that it's interwoven and unconscious.  I should probably strive to be one of these people.  I owe them so much.

It also means, if this radio chick is right, that by reaching out to others in our situation, by stepping outside of ourselves for even a few minutes online, that we've done this first step of being good to ourselves.    It's funny to think that I may actually be more gentle on myself after my baby died; here I gained a ton of weight I couldn't lose, and now swear uncontrollably and grew more cynical, and bleed bitter out of my eyeballs  . . . . but maybe I did.  Maybe we all did.  Our interconnectedness -- if this radio chick is right -- proves it.

Good for us.  /pats cyber self on back

Do you ever trip over the line into self-pity?  (It's ok, I'm sure I did.)  How do you pull yourself back?  Do you experience self-compassion -- that is, do you feel some connection with others in your suffering?  How about in their suffering? Are you good to yourself?  Or does the whole "be good to you!" conversation give you the heeby jeebies?

cyber love

My cell phone rings, and I see it is my friend calling. I don’t answer. I heed the voice in my head saying, she won’t say what you want her to say. I leave the phone alone.

It is February 28th, my baby’s birthday and death-day, and a stillness has descended on our house. Outside a cold rain falls from the sky and freezes as it hits the ground. Brian and I sit on the futon in his office with blankets, mugs of tea, and laptops. All day he stokes the fire in the woodstove. We listen to the crackle of burning bark without speaking.  We keep the lights low. Now and then I look out at the branches of our maple tree, steadily being encased in ice.

All day I sit, working a little, reading a little. Meanwhile, my laptop stays open to Fa.cebo.ok and email, and the cyber condolence flows in. A hug sent here, a love note there. All day, my baby is being remembered someplace on the globe.

I get only a few condolence calls. This is okay, because my heart is so full that I can barely speak. I let them go to voicemail. When the call comes from my friend, for a moment I consider answering.  Did she remember?

No, she did not. On my voicemail she leaves a sixty second rant about delayed flights and the price of gasoline. That’s all. Everything she didn’t say adds to the silence in my house.

* * * * *

The nature of my friendships has changed. Wasn’t there some celebrity in the 1980s who survived a plane crash, and then left her husband for a man who was in the same plane crash? I feel like her sometimes -  like you can only really get me if you were on the plane too.

But I haven’t cut anyone out of my life.  I have become an enigma to those “before” friends. They have unknowingly inflicted wounds, yet I still need them badly. Sometimes I need a time-out from grief, and a friend who’s never been to the dark side of the moon – plus a martini – can be just the ticket. My “before” friends link me to the “before” me— a self that I once knew and liked but can no longer access. I might need her someday, and they carry memories of her.

But this one friend – I can’t compartmentalize her. I’ve tried limiting our interaction to occasional social outings. But she is accustomed to our friendship running deeper than that. She probes and wants to know how I’m really doing. So I tell her, and she can’t change the subject, or clear the room, fast enough. I fall for it every time, because I believe that she is better than this. For two years I have been throwing my heart into her path, only to watch her casually step around it.

photo by youngthousands

If only she would say my baby’s name just once.

If only she would not complain to me about how hard it is to raise her daughter, born alive five weeks before mine.

If only she did not wonder how the holidays could be hard for me, since they are so fun for her.

If only she would tear up a little about my loss, the way she does at those TLC shows about moms who give their babies up for adoption.

If only she did not think of my loss as a health problem.

If only she believed my baby were real.

* * * * *

If only she were on Fa.cebo.ok.

Thinking of you.

(((hugs)))

remembering your baby

xoxo

So simple. So easy. That very tiny bit of love, sent regularly by keyboard, lets me know that my friends care, even if they don’t completely understand. It soothes my beastly bitterness at how the world slights this type of loss. Fa.cebo.ok, of all things, has saved some real friendships, by helping me let people off the hook for not being better at this. (Not you, Dad. If you are my parent, Fa.cebo.oking me on the baby’s birthday does not count.)

Maybe if this friend were on Fa.cebo.ok, she would say those needed little things on cue. Maybe she would see what other humans post to me, and a lightbulb would go on. Oh, that’s what I’m supposed to say!

But that’s a fantasy. Cyber love can’t save this friendship. I’ve gotten myself into a tug of war with someone who doesn’t even know she’s holding the other end of the rope. She can’t imagine the sacred stillness of a house on a dead baby’s birthday – she can’t feel what I’m feeling, even a little bit. The only thing left is for me to drop my end of the rope and walk away.

* * * * * *

How’s it going with your friends from before your loss? Is there anything you wish they would say that they haven’t? How do you handle friends who have hurt or abandoned you during this time? What role does the internet play in your friendships these days?

you are here

Next month, on the 21^st, it will be two years.  To a toddler, that may be a lifetime, but to an adult, it is an election cycle.  And yet, thinking about the amount that has been packed into that brief stretch is like thinking about how, in one second, light will travel 186,000 miles, or how one teaspoon of a neutron star would weigh six billion tons.  They are things that can be known, but not comprehended.  Not really.

Lately, I have been having more of my “Gus and Zoey Moments” than I used to.  These are moments when I think of them and feel the floor drop out from underneath me.  When I think of them and feel sad.   As the second anniversary of their births and deaths approaches, I may miss them more than I did after the first one.  I may.  It’s hard to remember.

Maybe it is because we are now within a month of their anniversary.  Maybe because Ben and Ellie’s growth provides reference points for what Gus and Zoey might have looked like, or acted like, or been like, if they had only, simply lived.  Either way, they are more present to me these days.  That might have been a nice thing, but it means that there are moments when suddenly, Ellie and Ben seem like my other children.  And I don’t know how to explain that to them or to my own heart: Don’t worry. It’s only because the anniversary is coming up.  It will be like this for only one month out of the year. The other eleven, you guys come first.

Maybe that sounds crazy.  If it does, then here comes the crazy on top of the crazy:

In those moments of connection to Zoey and Gus, and wondering about them, and imagining them, I miss Ellie and Ben.  I have to: in that universe, my other children never were and can never be.  So when those moments with Gus and Zoey end, and I feel myself being pulled back to what is in front of me, I cross a space where I have lost them all.  I am leaving a place where I have Gus and Zoey, and not fully back in the place where I have Ben and Ellie. 

I am in this in-between place for the briefest measure of time—what is shorter than a nanosecond?—but the experience is so distinct and definite, the tinge lingers for seconds or even minutes afterward:

For just a sliver of a moment, I miss all four of my kids.  And why shouldn’t I?  There is no universe that can accommodate them all.

And if that sounds crazy, then here is the crazy on top of the crazy on top of the crazy:

Sometimes, when I feel I can only hold one set of our children in my mind, and not the other--or worse, when it seems like because I cannot keep all of my children, I cannot keep any of them--it feels as if our only constant child is our dog.

What are some of the "crazier" thoughts, ideas, or feelings your loss can bring up? What does the anniversary of your loss trigger for you? What are some of the ways you cope with it?

gone

We'll, I've just about done it.  Seems it has been my goal all along without even realizing it, but now it is as clear as day.

I've been trying to disappear completely and I'm almost there.

Since Silas passed away I've been step by step letting go of everything that can't help me.  Friends that can't handle my sadness, gone.  My previous car: rear-ended while I was not in it, and then subsequently totaled by the insurance company.  The future I expected as Lu grew grew and grew, utterly and completely altered, that specific path annihilated forever.  Even money itself.  We've never had much and I've worked hard to not focus on money as a source of completion and happiness.  Instead I've tried to just put my head down and work, roast coffee, get new customers, and just do everything as best I can, figuring the money will follow if we just stay true to our core values.  It's worked and we're growing as a business, but the bills always pile up.  In my mind, though, they are gone, immaterial, unimportant.

I've got creditors coming after me, but there's nothing for them to get.  We rent.  My most valuable possessions are my wedding ring & my Droid.  My brother in IT gave me the laptop I'm typing on right now.  My father got the loan for the used car I drive, and I pay him back month to month.  And then last night I took the final step and inadvertently cut all remaining ties to regular-world-life by somehow leaving my car unlocked, and my wallet exposed within.

I'm still not quite sure how I was so completely careless when I am usually exactly the opposite, but there it wasn't this morning when I got in my (father's) car to drive to work.  I hardly ever have cash on me, but last night I did and now it's gone.  I intended to use it tomorrow to pay for the sperm-freeze which is one step of our 3rd IVF attempt, but I'll have to find another couple hundred bucks to make that happen.

Thankfully, one of the things I do still have is a great family so they are going to help, but at this point I think it's more that they have me than I have them.

No license.  No ATM card.  No insurance card.  I've never lost my wallet or had it stolen.  Not once in my 37 years.  I cannot believe I was so stupid to let that happen, but obviously it's not the first mistake I've ever made.  Not by a longshot.  And compared to what I have already lost in my life, a few hundred bucks is essentially absolutely nothing at all.

Perspective is everything, I guess.

My perspective is unlike anything I ever expected.  I'm through the looking glass here.  Everything is gone except the love of my wife, my friends and my family.  I am finally here, all the way through, all the way emptied of objects, of possessions, of expectations, perhaps even of hope.  But it's not even that I'm now hopeless, more that I am completely status quo.  I am now.  I am this.  I am here and alive and I won't ever let that go, but all the extra and all the bullshit and all the everything I can't control it's gone gone gone and that makes me feel good.

My slow coast to this rocky bottom took long enough, but I'm glad to finally touch the bedrock and feel its cool, impenetrable heft.  There's more that could be taken from me, it's true.  Loved ones, my life itself, the clothes on my back, shelter, food, but losing those would destroy me altogether.  The gone-ness I feel is really a slow choice I've made to only hold onto these essential elements.

In order to survive I must love and feel loved.  I must eat and drink and laugh and sleep and shit and piss and cry and breathe.  My heart must pump.  My eyes must look forward and my feet must move me forward to whatever comes next.  But money won't save me.  A bank account won't protect me from the ravages of life.  A flimsy piece of folded leather and an ID tucked within won't hold back the disintegrating Universe.  It's gone, anyway, all of it.

I'm unlabeled, untethered, unincorporated.  I lay on my back on the bedrock of the bottom and look up, far up at the distant sky and streaming clouds and it doesn't matter that I'm on top of a mountain of grief.  My eyes are still open, my heart still beats, my soul still rages with anger and love and anticipation and fear, and nothing can stop Time's hold on my life and the inexorable rise of tomorrow's Sun.  It'll happen even if I don't look at the clock, or at the watch I don't have.

~~~~~~~~~~~~~~~~

What were some unexpected repercussions of the loss of your child?  What have you let go or held onto since their death?  Do you feel like you're at rock bottom?  What helps get you up?

on the bookshelf

I have one shelf in my library with the books about bulging bellies and chunky babies. Witchy books of herbs for pregnancy and the childbearing years. Academic books about development. Unopened books about sleep training. Bought books about gentleness and discipline. Enlightened books about mindful parenting. Bestseller books about what to freak out about when expecting.

When I came home from birthing my stillborn daughter, my only interest in that shelf and those books was the index and the glossary. Every pregnancy book I opened, I searched the back first, fingers holding the pages of the index that read “Stillbirth,” “Death,” “Grief.” Though I now intimately knew what stillbirth was and what exactly happens medically after your child dies in you, I searched for some nugget of understanding about why Lucy died--the physical and the metaphysical reasons. I dug those meager pages for a prescription for survival. I didn’t want to learn how to deal with my heartburn anymore. I wanted to learn how to deal with my heartbreak. The only question I now had about parenting was “How do I move forward?”

Most of those books start their loss sections with the same obvious sentiment, "Every parent's worst nightmare..." And it was all so pat, so obvious, to someone who has suffered a stillbirth. “Make sure the mother holds the baby. Make sure to take pictures. Make sure to grieve.”

Don’t worry I won’t forget to grieve.

When I realized that every loss from miscarriage to stillbirth to SIDS was wrapped up in a glib two-page section, I started collecting my own books. I have a new shelf now. It started after those pregnancy books failed to offer any solace. And it is no exaggeration that each book on that hulking shelf has given me something. I read a book about how other cultures deal with the death of a child, Sookie Miller’s Finding Hope When a Child Dies, which opened up the universal experience and exposed me to babyloss rituals from around the world. I bought children’s books, like Something Happened, that talked specifically about pregnancy loss and losing a sibling so that I could help explain to my daughter why we were so impossibly sad. Reading Elizabeth McCracken’s memoir Exact Replica of a Figment of my Imagination made me feel like I walked into my best friend’s home. She made a cup of tea, wrapped me in a quilt and shared my own story, only with more humor, insight and love than I could possibly muster at the time. It was the first time I felt understood intimately by another person. I have spiritual books, like When Things Fall Apart by Pema Chödrön, that gave me Buddhist teachings on fear and loss. It was a book I bought during my grandfather’s death that I rediscovered after my daughter’s. There are books about surviving pregnancy loss, like Empty Cradle, Broken Heart by Deborah Davis, that gave me some reassurance that these feelings were not eternal, that I would find some place of calm eventually. I have collections of poetry about grief and death, like In the Midst of Winter, which were gifts from friends that simply said by dint of their existence, “You are understood.” I eventually added to my collection a book about pregnancy after loss called unsurprisingly, Pregnancy After Loss by Carol Lanham. That shelf held me together some days, reminding me of the universality of my experience. Simply seeing the book titles together in a row, I was reminded that I was not alone.

Some days, honestly, that was enough.

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Jessica, librarian and author of Dear Gus, pulled together an incredible collection of books about grief and loss in Glow in the Woods new section, On the Bookshelf. Please visit for a spell, let her know what you think and what books you found helpful in your grief. She will be expanding and adding to this section. We are so appreciative of her insight and librarian superpowers to expand our resources.

Did you turn to books after your loss? What kinds of book were you looking for? What books did you find that resonated with you? What books have been helpful to you in your grief?



food for thought

I remember at some early therapy session, back when I wondered how much of my fee was spent on tissue, that I started going through the list.  You know the list, the list of things that you lost in addition to your baby.  As if that wasn't enough, I also seemed to have misplaced joy, happiness, fun, the ability to communicate with others, a sex drive, a flying poo about my health and hygiene, and taste.

I lost my ability to taste.

"I lost my ability to see in color," admitted my therapist, referring to the period after her mother died.  "It was as if the world was black and white."

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I'm not sure when I became a foodie.  I think perhaps it was there, latent, with my careful reading of Bread and Jam for Francis and how I fantasized about elaborate and difficult lunches with doilies and salt and pepper shakers.  I lived on escargot when I went to France at age six.  I dreamed up elaborate picnics with mini quiches in High School.  I fell in love with a foodie, and we spent our Honeymoon at a cooking school in Italy.  We were the odd couple who rarely ate out, made almost everything from scratch, and relished trying new recipes.  When we moved into our new house, in our new city, we were so relieved to finally be in a place where people knew and loved their food.  We started a raging debate in the cell phone store on our third day here when we casually asked where to get the best . . . I honestly can't remember what we asked about. But everyone in the store had an opinion.  We felt as if we were in heaven.

I'm not sure when it hit me, that food was sawdust.  The first few weeks after Maddy died I lived solely on food that people brought over:  cookies for breakfast and lunch, and then I'd pick a bit at a well-intentioned dinner, announce that I was tired and going to bed, and retreat upstairs to cry.  After the gifted food and the freezer stash ran out, I segued into cereal.  That's it, cereal.  I honestly can't remember what I fed Bella or what she would have been eating at that  point in time -- I'm guessing a slew of frozen chicken nuggets and mac&cheez.  My favorite bourbon barbecued chicken may as well have been a soggy bowl of bran.  Everything tasted like cardboard.  

The only thing I could barely perceive was coffee.  I'm not sure if it was the taste or smell per se, maybe just the jolt of caffeine or now that I think about it, the mere act of normal routine and comfort of holding a warm mug .  There were months where the only thing making it possible to swing my feet off the bed and onto the floor was the thought of making coffee.  I drank a lot of it.  I figured it was better than other things I could be drinking.  At some point I realized this probably wasn't the greatest thing I could be doing for myself and decided that in between cups, I needed to drink three glasses of water (and say three hail Marys).  It's a small measure of guilt I carry with me to this day, even though I never make it beyond two.

We didn't eat out.  Not because I didn't want to, or we couldn't, but because I didn't want to waste money on food I wouldn't enjoy.  It's not that I stopped eating, it's that grief masked flavor and thereby erased one of my greatest joys.  My great grandmother lived to be 100, and became extremely depressed right before her death because she lost the ability to taste her food.  I got where she was coming from.

"I remember the day, very vividly," said my therapist, "when I realized I could see colors again."

I'm not sure there was a day, a hammer on the head, or a gelato I could point to, but there was a slow creep.  And a year and four months after Maddy died, a friend took my husband and I out to dinner at a very good restaurant and I realized through the multiple courses and accompanying wine that I could taste again.  I could discern the nuances in the wine, I could decode a sauce. I could enjoy a dish simply sitting over it and inhaling the aroma without even taking a bite.  

I could experience food for the first time in over a year.  It was as if someone colorized the black and white movie my taste-buds had been living in.  Lettuce became green, capers became salty, coffee became lovely. 

Appreciating food again wasn't the pinnacle of recovery by any stretch of the imagination; I still wasn't getting the whole Joy thing.  But it helped considerably to know that grief hadn't completely eradicated something I loved so much, because losing my daughter was miserable enough.

What -- if anything  -- did you lose in addition to your child(ren)?  Have you found it again?