Odds and Ends in the Galaxy of Grief

Grief washes over me.

It is not the same grief, not like it was almost four years ago. It is not the same at all, but it is still grief.

In its barest form, can grief be anymore than a wish for what once was? A desperate and primordial wish to return to what was? A return to a place that is safe and comfortable. Tragedy, perhaps, forces us to inhabit a skin we do not think of as our own.

We find ourselves looking at the new us, pink and raw, fragile and still broken, and we are perplexed. Angered. Bewildered. We scratch at the new skin, convinced the old is still somewhere underneath. Time goes by and we at least become more accustomed to it. No more do I catch sight of myself in the mirror and wonder who that woman is, with the frazzled hair, nails bitten down into the quick. She does not smell of the un-showered, dressed in dingy browns and greys.

And then, suddenly, I catch sight of myself, my circumstances, my life in a new light. The suddenness of it is mystifying.

I cleaned out the bathroom cabinet last week, prior to beginning my big renovation.

A lifetime's full of  the accoutrements of pregnancy attempts. The ovulation predictor kits. Empty bottles of fertility drugs. Pregnancy tests. Sperm safe lubricant. The pads I use when I miscarry.

Each of them an entire constellation of feelings and emotions. Galaxies of hope and despair, dragging me right back in.

I protest. I protest mightily, I am not that person. I am not that woman. I am not the beleaguered mother of dead children. I try to dig in my heels, but what is mere woman against the physics of galaxies.

I sit on the floor of the bathroom, agreeing to be in that space again. I sit and think about the first tube of pre-seed, what I thought was the answer to all of our fertility woes. I look at the dosage of the drugs and try to track them back to another appointment and another protocol - was this year 2? Year 3? 

I think of the futility of OPK's, displayed by the variety of manufacturers represented. I think of that nurse, the one who smirked when I quietly spoke up. "Para 4, gravida 1. It's just that he died thirty minutes after he was born. My son. His name was Gabriel."

She didn't get it either.

She, like so many, looked at the skin stretched over me, wrinkled and scarred, and she turned her head.

I turn my head too.

I walked away from all of this, I walk away from all of this. I sigh and stand up, sweeping it all into a black garbage bag. All of it. Great handfuls of my hopes and dreams, armfuls of despair and sadness. All of it, into one black garbage bag.

I haul it out of the house with leftover bits of tile and paint chips and packaging from the new bathroom mirror.

I am not her.

Standing on the back deck, my sides heaving from the pull of that galaxy.

This is grief.

This is what catches you, suddenly, as you mind your own business.

This, the reminder, that skin you wear now, it was not always so.

Does this definition of grief seem to ring true for you? Have you been surprised by how grief can catch you when you were least expecting it? How far are you from your loss and are you better equipped to handle these surprises? What have you learned to cope with them? Are you getting comfortable in your new skin?

The Sound and the Fury

I am a sharp and pointed thing. My tongue is quickly poison-painted. Fighting talk? My words are weapons, and I’ve used them to wound. There is a cruel satisfaction in leaving a barb in an opponent’s tender places.

I am not proud of this. But it is my truth.

photo by sedeer

Over time, I have learned to wrap my rage in cooling sheets and camomile. Now I am a real-life-card-carrying-grown-up-woman-lady-with-responsibilities I practice caution. Hurting people is not Nice, you see. It is Unkind. I want to be loving and nurturing and other good things. I believe in Kind. ‘Kind,’ I say to my living children, ‘be Kind.’ That’s the most important thing, to be Kind.

But sometimes all becomes hot. My rage bubbles and boils. Kind evaporates rapidly, and all that’s left is the salty residue of Mean. And that’s when I unleash the wicked tongue. And it is merciless.

I often thought that grief would make me good. But it has just made me more of who I am. Damn it.

I see a counsellor. We talk about the Mean. We talk about the way that seems to be the essence of me when all the rest is boiled away. We talk about a special, stop-shouting-at-hapless-acquaintances strategy.

‘TRY THIS’ she says (she is very loud my counsellor)

‘WHEN SOMEONE DOES SOMETHING THAT YOU FIND UNACCEPTABLE, THINK “ASSERTIVE” NOT “AGGRESSIVE.” YOU SIMPLY FRAME IT LIKE THIS:

‘WHEN YOU.... ‘(insert description of provocative behaviour. Note I said  description. Not judgement)

‘I FEEL .....’ (insert feeling. It is OK to have feelings. It is OK to name your feelings. But do not blame.)

‘NEXT TIME I WOULD PREFER THAT YOU....’ (give a suggestion or a solution. Something constructive.)

‘Thank you so much’ I say ‘What a delightful and pleasant way to interact. That would be a better way to deal with my rage. I shall try it as soon as I am given the opportunity.’

And so, I do. And in situations that do not involve dead babies, I promise you I am being the MOST constructive, assertive, shiny-eyed Kind person I can be.

But then...

But then...

Then all becomes hot. My rage bubbles and boils. Kind evaporates rapidly and all that’s left is the salty residue of Mean.

‘WHEN YOU...  appropriate someone else’s dead baby tragedy to illustrate what a heroic, selfless paragon of virtue you are for taking round a frozen lasagne once and then never speaking to them again...’ (Judgmental, moi?)

‘I FEEL... like stabbing this pencil up your nose and into your brain.’ (What? I’m just naming my feelings.)

‘NEXT TIME I WOULD PREFER THAT YOU... did not bring the worst of yourself to dance all over the most painful part of my heart, but rather fucked off and bothered someone else with your solipsism.’ (Well... it IS a suggestion. They don’t HAVE to do it.’)

And there I am. Mad mama of a lost baby. Raging, raging at an unfair world where lasagne doesn’t make it better and all the assertiveness training I could have won’t take that that salty Mean away.

 

Are you angry in your grief? Do you ever boil over, or does your rage simmer quietly? What soothes your temper, and where can I get some?

 

Silas' Season

It creeps up on me like the shadow of his absence.
I feel him first as a whisper breeze that cools a hot late summer day.
When a leaf leaves the tree, I fall with it
into piles of grief on the curb.
The suddenly incessant crickets every single night:
Exactly like his name in my head,
every single night.
The days tighten, losing light
as my heart constricts in anti-anticipation.
That moon, that September night, her labor and pain.
One by one, the leaves arrange into place.
The moon eases in its orbit.
The Universe rings my soul like a broken bell
when that perfect autumn eve
exactly captures the essence of the day he was born.
I cannot stand it once again
and once again I cannot move aside from the
drenching, gusting, cold fall storm
that is my face and heart and soul and hands
when his birthday is here
and he is not.

I have to settle for the fall.  For the piles I drive through.  For the crickets that sing their vigil.  For the cleansing rains.  For the chill of our loss on the last bits of summer heat, and the cold nights ahead where we have to hold each other close and let the spark of our souls keep his memory warm in our beautiful and broken hearts.

What does the season of your loss look and feel like?  Has it changed the way you view that time of year entirely?  Or are there other non-seasonal triggers that remind you of the day you lost your child?  And please feel free to offer a poem of your own, if you like.

Who was that?

When Catherine W. came into this community, I found her comments here and there, nestled amongst the others. Her insight and the haunting beauty of her words blew me away, and I wanted to know more of her story. It unfurled, moment by moment, through the months. Then, as though my prayers were answered, she began writing her blog Between the Snow and the Huge Roses. I think I speak for many of us when I say that it was as though her words were always here within us and around us, like the Poet Laureate of the Heartbroken. Her girls were born so early at just over 23 weeks, given impossible odds. One survived. One did not. She writes about that liminal place between lucky and unlucky, grieving and rejoicing and the intersection of all those emotions at the same time. I hope you join me in welcoming Catherine, as a regular contributor to Glow in the Woods. --Angie

One thing love and death have in common, more than those vague resemblances people are always talking about, is that they make us question more deeply, for fear that its reality will slip away from us, the mystery of personality.

From Swann’s Way -  Proust

I have to confess that I have not read any of the seven volumes of Proust’s ‘In Search of Lost Time.’ I don’t expect I will ever read anything that comes in seven volumes; life is short and time’s a-wasting. But my eye caught upon this quote in an interview with the novelist Francisco Goldman about his most recent book, Say Her Name. It is a semi-fictionalised account of the unexpected death of his young wife, Aura, in a freak surfing accident.

He summarised. The fundamental questions in death are: who was that person? Where did that person go? Who was that? And in love, it is the same: why does this one person, out of all the millions on the planet, suddenly merge with me so I effectively want to be her all the time? Why does this one person so enthral me? What is it? What was that? Who was that?

My mind, as it tends to when questions of love and death arise these days, immediately jumps to my daughter. Whose personality was, perhaps, more of a mystery than most.

When I have mourned the death of an adult, I have felt the tug of the specific. The particularness, the peculiarities of that person. And, when they have left, the question hangs in the air: who was that? I mull over characteristics and search through memories. With time, I have often gained some degree of resolution to that pivotal question, at least a partial answer.

But three years after my daughter’s death, this question is still keeping me up at night. Scratching my head in bewilderment. Wondering. Who was that?

photo by quinn.anya

My daughter. My half made girl. Whose brief life was so tentative and flickering.  Supported by whirling, whispering machines that gasped and kept time for her. This person who I am so in love with that I have tried over and over to inhabit her body, to live her short life. Imagined myself into that plastic box. Sometimes I even feel that it was me lying there, our identities have become so confounded.

Who was that? This person for whom I have been in mourning for nearly seven times as long as she ever lived. Already disproportionate according to some. But I suspect that multiplier is only going to increase. 

My husband and I were the only mourners at our daughter’s funeral and we were early.  We walked around the outside of the crematorium before the service. There were labelled spaces around the pathway, for the flowers that we hadn’t thought to bring. A space had been laid out for ‘Baby Georgina W.’ I couldn’t help wondering why she needed a qualifier.  Nobody else being cremated there that day had a preface. No middle aged man Joe Bloggs, no teenage girl Jane Doe. Only their names. But the babies, they all had that descriptor, a capitalised Baby, pinned to their fronts.

This type of loss has a nomenclature all of its own. It has qualifiers. Not just simple death. Miscarriage. Stillbirth. Neonatal death.  A different brand of death.  I still can’t decide if these terms are dismissive, diminishing, acting as a kind of Death Lite, or if they indicate that a death so very terrible has occurred that it needs to be somehow singled out. Death Ultra Ultra Heavy – handle with caution and step away as quickly as you can, thankful that this one isn’t yours to deal with.

Because the mystery of personality, the question ‘who was that?’ has a slightly sharper edge to it when a person whose life was very brief is under consideration. Sometimes I think the world at large cannot decide whether the loss of a baby is rendered insignificant by the brevity of their lives. Or made even more tragic, rendering the whole topic taboo.

That sigh, the exhalation that often comes when I add the qualifier ‘at three days old’ to the opening statement ‘my daughter died.’ That sound of relief that always seems to say to me, “oh phew, three days old, well that’s ok then. That is not as bad as the death of a three year old. Or of a thirty year old.”

Those words that so many of us have heard, “it’s not as though you knew her.” From the mouth of my doctor, a few weeks on, “It’s not as though you lost your husband. It could have been so much worse.” But he neglected to mention how to quantify the difference between husband death and daughter death and I was too sad to ask.

I ask, who was that? They say, why do you even ask that question, you couldn’t possibly know the answer.

My daughter’s life was very short and brutal, existing between the hazy ground of late miscarriage and the shadowy life sustained by maximal intensive care. A few short months in my womb, where I had barely started to feel her movements, followed by three days in the desperate world of the NICU.  My husband and I sat, craning forward over the desk, foolishly eager and optimistic, opposite the hospital consultant. He gently explained that there was nothing more that they could do, it was time to stop.

As she was dying, I felt I knew her in a way that I have never known anyone else. Perhaps because her entire life was spooling out in front of me, nearing its completion.  But I felt that she was not only the premature infant, dying in my arms. Her corporeal form shed away and she was simply . . . herself. At all ages and at no age at all. Looking back, I’m not sure how much of this experience was fuelled by post partum hormones and shock. But, at the time, I felt we had met. In a way that I have still not met either of my living children and, perhaps, never will. I hope that I will not see their lives complete, come full circle, as I did their sister’s. Time stretches their limbs and works on them, changing them inexorably and mercilessly. But not on her. The child who is, simultaneously, both the eldest and the youngest in the family.

In other circumstances where I have felt determined to get things right, to respond correctly, to inhabit the moment, weddings, birthdays, surprises, I have felt a veritable agony of self consciousness. And death is one situation where there is no ripping up and starting again. I was going to hold my daughter, just once. She was going to die, just once. And everything I had to say to her, everything I could hope to glean about her, everything I would ever know about her, well, that was the hour. It should have felt terribly pressurised. But, as my daughter slowly died, observed by strangers, I held her. And, amidst that strange calm, I felt that I knew her.

Do you ever ask, 'Who was that?' How do you answer that question? In what ways did you feel like you knew your baby(ies)? Or do you cringe even thinking about that question? Does it feel impossible to truly know a baby? How has that affected your grief and the ways you see your baby? 

Searching

When I first became acquainted with Josh's writing at his blog Jack at Random, I became immediately enchanted with the beauty and honesty in which he articulated his deep heartbreak. I grieved with him for his daughter Margot, who died March 24, 2011, after his wife fell and suffered a full placental abruption. In a blink, he lost his second daughter, almost lost his wife. The raw love, jagged and stunning, expressed in each sentence resonated so deeply with me. I found myself crying before I knew I was grieving for another. We are just so honored that Josh has agreed to join us here, as a regular contributor, sharing his journey as father and husband with us. Please help me welcome Josh to this space. --Angie

She was there for a time, in my arms, her cool cheek against my wet cheek, her pale forehead touching my forehead, her limp body held tightly against my chest.

Then she was off, in the care of impassive strangers, having open heart surgery to remove her valves for donation, taking little joyrides around Los Angeles between the hospital and coroner and crematorium.

She arrived back to me in a little white canister, her name neatly typed in courier font on a small strip of paper: Margot June Jackson. Number 4-2389.  Cremated 03/31/2011.

And then she was in my sock drawer. She was partly there to protect us all from the possible awkwardness of others seeing her, and partly to protect us from the harsh reality that our daughter was suddenly reduced to ashes. For those few days before the memorial, I saw nothing in my house but the canister. I’d walk past mourning grandparents, step over my two year olds toys, eat dinner around a table and it was all just a blur. My daughter was in my house, in a canister, and I saw nothing else.

And then we took her into the woods and poured her into the river.

And then I couldn’t find her.

For if we find the deceased in our collective memories, where they still live on, cemented in photos and stories, how can we possibly find our babies? When memories barely exist, a few hours here, a few days there, how can they remain present? And when there are so few collective stories, passed on by those who knew and loved and touched the deceased, how will anyone else remember or find our babies?

Heaven would be nice, if I believed in such a possibility. It’s a comforting thought to think I could meet her one day again. Reincarnation would be nice too, the thought that she might resurface somewhere in the world, another chance at the tricky elusiveness of life.  But instead, my mind only allows what I can know without doubt. She died. We had her cremated. And we placed her ashes into the river.

Even still, I search and search, looking around every river bend, under every mountain rock and desert plant, on the metro and freeway, in the few pictures we have, in my fleeting memories, in my letters to her. But she is rarely there, always just out of my grasp, always still dead.

And yet.

As the months trudge on without her, as my search turns up empty, as the solitary moments I had with her slowly scatter to the far reaches of my memory, I’m starting to notice that as my grief evolves, I can find her from time to time.

Sometimes I find her in this new life that has suddenly emerged, one filled with desperate sorrow over her loss and sadness over a life that has become different than I always imagined. And in carrying these losses from day to day, I carry my daughter along with them. 

Sometimes I find her in the water, in the river where we said goodbye, in the ocean where she eventually ended up.

Sometimes I find her in this new company I’m now apart of, the society of the suffering. We have joined those who know and experience loss, whether close to home or far away. I find intimacy with them, with you, and in those moments, I feel close to her.

Sometimes I find her in new friendships, which have only formed because of her absence.

Sometimes I find her in my broken heart, the fragmented pieces that drip with sadness but also hold her very existence. Since I can never have her back, what’s better - a whole heart without her ever existing, or a broken heart with her dead? No matter how short her life, no matter how little time we had together, she is my second child. And I choose her.



Where do you find your kids? Do you find them in different places as your grief has evolved over the months and years? Do you find them at the grave, in your home or the spot where the ashes were scattered? Do you find your baby in a symbol?






short story

 

I have this idea for a short story.

 

Okay, this woman is sitting in the Perinatal Evaluation and Treatment Unit (PETU). Her husband is holding her hand. She keeps holding her belly and talking to it.

Be alive. She thinks, or maybe she says it out loud. She doesn't remember.

The couple trembles. They are on the verge of giggles. It embarrasses them both that anxiety reacts in them in this similar way. The nurse just listened to her belly with a heartbeat monitor and couldn't detect the heartbeat. She said, "This machine must be broken. I will get an ultrasound machine." The couple want to believe her, but something gnaws at them. It seems an unlikely coincidence that they would come in to find out if their baby died and the heartbeat monitor died instead, especially since they could hear the mother's fast, desperate heartbeat reverberating through the room.

The parents overhear the nurse ushering out the pregnant lady in the other bed. They tell her she will go to another room. The other pregnant lady had been arguing in Spanish on a cellular phone, but even she is quiet now. In the quiet without the woman and nurses, they both realize that the baby is dead, perhaps, or maybe their thoughts aren't quite that developed. But they both have the same impulse to protect the other, so they say nothing just yet about how the baby died and wait for a doctor. The mother's insides get all agitated, empty, nauseated. All turned upside down. Something is happening, her body tells her. It is something bad. It is something scary. Let's run. Let's go back home. They seem to think at the same time. Let's forget this ever happened. Let's yell at someone. Let's hit something. Let's scream.

The ultrasound machine is rolled in followed by a doctor, a midwife and two other doctors. It could still be alright, they seem to want to believe. Usually they don't need a team to hear a heartbeat, but when her baby's small form is shown to her on the small screen, curled in position, she can see there is nothing happening in her chest. It is still. So fucking still.

The mother says, "There is no heartbeat."

And the doctor says, "Yes. I'm sorry your baby passed away." And the mother will think later that is not a phrase that should be used on a baby. Babies die. Old men pass away. In their sleep. Because they are old and lived a good life. The life of this baby was ripped away from her body too early, too heart-fucking-breakingly early. She should have said your daughter has been murdered by Fate.

The medical team leaves them to process this information.

 

I know you know this story already, but hear me out. It is different this time. This short story I want to write. It is different.

 

They keen and howl and hold each other. The mother grabs her husband by the shoulders and says, "I'm sorry, but I am never having another baby again."  Then a nurse walks in to take them to the labor and delivery floor. The woman wonders if she can die now.

Can I just let go and die? I don't want to birth a dead baby. That is about the worst thing I can imagine. I never should have to go through this much physical and emotional pain at the same time. Just kill me, God, please just kill me.

"You cannot die right now, mama," the nurse whispers into her ear. It startles the mother to have her thoughts read so easily. She wonder if she has been speaking out loud, though she knows she would never speak those words aloud. The nurse is older, kindly, has a long salt and pepper braid running down her back. She looks familiar. So familiar. Then she realizes that the nurse is her. The nurse is the mother many years later, decades perhaps. She takes in this fact calmly. Clearly, she is in a nightmare. Or she is dead. Both of which is preferable to what is actually going down in the PETU. She turns forward again in the wheelchair.

Yep, that is me pushing me in a wheelchair about to give birth to my dead fucking daughter. It is so fucking cruel.

It is cruel, mother. All of this is cruel. It doesn't get easier, but it will become bearable.

Will it?

Yes. But like a bruise, it will always be tender, and it can easily become unbearable if you push on the hurt long enough, if you focus on the pain. But for the first eighteen months, you can do nothing but focus on the pain. That is right and good. Your daughter died. It deserves all your attention. Just don't try to die. Your family needs you. And you won't. You won't try to die. Just don't drink so dang much.

Yes, I know you are right. I don't want to kill myself, I just want to stop living.

That's normal. You won't feel like that forever. I promise.

The nurse rolls her into the room. The nurse is her, so technically, she is rolling herself into the labor and delivery room. It is like all L&D rooms.  The mother wonders how on earth she will bear to hear other women labor.

"We have you separated. You won't hear anyone else. All new mothers are taken to the other wing. Unless we fill up. But we do fill up tonight. You hear a baby being born at 5 in the morning. You actually feel joy the one time you hear a mother birth a screaming baby. You are happy for them. Don't worry. We have marked your door with a lily. It is so others will know that there is to be quiet in this room, solemnity, respect. We are all mourning with you here."

"I just wondered what happened with that."

"I know. I know everything that is going to occur to you. What you are thinking, what you are feeling, what will happen. I am here to guide you through this birth. To help you know what the future looks like under your own devices. I am the Ghost of Birthing Dead Baby Past."

"I think you need a new name."

"You will think it is funny in a couple of years."

And through the night and next day of delivery, the nurse tells her about what her life will be like. She says, "Have your mother come to hospital. Ask her to bring your daughter. It is important. It seems like too much right now to deal with a twenty-one month old, but it keeps you up at night that you denied your daughter the privilege of meeting her sister. It is too much to bear that they never met."

Later, the nurse rubs her feet  through fleece hospital footies during the earliest pangs of pitocin-induced contractions. "Don't be afraid of seeing your daughter. You are so terribly afraid of that through all of your labor and you forget about those fears the second you see her. She is beautiful. You see her bruises and it disturbs you, but you also see only her beauty, your nose, your hair. Take off all her clothes, kiss her feet. Take many more pictures than you think. Call Now I Lay Me Down to Sleep. I will find the number."

When the mother begins reading the grief packet, the nurse walks in with ice chips. "When you write the email entitled "Some Sad News," you ask people not to send flowers, or call for a week because a grief therapist told you to write that. Don't. Just tell your news. Don't tell people how to honor your loss. Because people read that as you never want them to call or give you any meals, or send any flowers, and they don't. Not ever again."

Later, after the mother rings for another pillow, the nurse leans in and whispers, "Don't tell anyone in real life about your blog. Ever." She fluffs the pillow and kisses her forehead.

As she is reaching the point of being fully dilated, when her husband and sister go out for some food, and leave her with the television, the nurse walks in. She sits on the edge of the bed and grabs her hand. "You are much more vulnerable than you admit or than anyone thinks. But you are also as strong as everyone believes, and so I must be honest right now. In the next year, you will feel abandoned. Your friends will walk away. You will feel righteous indignation at the injustice of it and you won't call them. Be the bigger person. I'm sorry to tell you that your daughter's death entitled you nothing, not even space to be an asshole. Some people, people you like, will never forgive you for not reaching out to them. You will miss them."

When the baby is born, the nurse cries with the mother. She holds the baby and kisses her again and again. She weeps and screams. More than the mother who is staid and uncrying. The nurse baptizes the baby and the mother in tears. But the nurse is also full of joy. The mother watches in amazement and silent admiration at how she can so easily move between these emotions. The mother feels absolutely numb, just numb.

"Lucia," the nurse says to the mother, "is always missed, mama. Smell her up. Hold her. Talk to her. Be her mama in the next few hours. This is all you get. You can't fully process that right now, but mother this baby." She hands the baby back to the woman. Solemnly, the nurse leaves the room.

The mother holds her baby for a few more hours, doing all the things the nurse advised. Some time later, the woman walks out of the hospital without ever seeing herself again. Not ever.

 

Okay, maybe it is a novel.

 

 

If you were rewriting your story after finding out your child died, what would you change? What advice would you give yourself? What kind of peace do you think that would bring? Would you even want a future you to advise past you on your own grief experience? Would it be easier to hear it from a future you or a stranger?