Subject to interpretation

Subject to interpretation

I was bombarded by hundreds, maybe thousands, of unsolicited perspectives about his death, his worth, my grief and generally how I was perceived to be doing in the aftermath. I was shocked that so many people in my life felt they had a right to press their opinions upon me—in regard to my dead son! I resented that amidst learning to cope with my loss, I was forced to explain myself, and defend my grief, over and over again.

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Expectations

Expectations

Jo-Anne, our forum moderator, is writing for us today. Her daughter Zia was stillborn on July 16, 2013. She says, "The years have passed and they will continue to do so. The sadness and initial rawness of grief has slowly subsided but there is still sadness there. It comes and it goes. Sometimes its a gentle breeze at other times a tornado ripping my insides. Explaining that isn't difficult, making people understand is. Opinions do not matter so much but how do we change the way society supports newly grieving parents if we cease the fight for significance of life. There truly is no footprint too small."

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Salvaging remnants of faith

Salvaging remnants of faith

The concept of God seemed to be filled with empty promises, ambiguous ideology about His view of humanity and morality, and cherry-picked scripture verses from the Bible that had nothing to do with me. God started to seem like a figment of everyone’s imaginations and nothing more, and yet I am still angry, and trying to salvage remnants of my faith.

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Double edged

"There it is"-- I surprised myself with how excited that came out. 

"I see it."

I let the credits roll to the end, then rewound to pause with our son's name just crossing the sea-sky horizon line. Over a year ago, on his 6th anniversary in fact, we contributed to the Kickstarter campaign for a movie called Return to Zero. They had a crazy-good cast and a babylost dad for a writer-director. I hoped they'd get it right. 

Turns out, a lot happens for a movie between the end editing and when the general public gets to see it. For this movie, that included being pitched to various film festivals, and eventually being selected for two. And even more eventually, a deal for TV distribution, on Lifetime.

We couldn't watch the movie the night that it premiered-- we had a friend staying the weekend, and this was something we had to watch just by ourselves. So we recorded it and watched it on a weeknight. And I've been trying to figure out how to talk about it ever since.

A few days before we watched the movie, I read online someone talking about how her family is split into readers and not-so-much-with-the-reading individuals. People in the latter category, she said, believe that if a book is any good, eventually someone will make a movie of it. The first thought that popped into my head was "but what if the book is your life?" Not in the way that some books inspire entire fandoms, but in the very literal sense of key event in this movie is also a key event in your life, and the movie is about that?

People have serious, long, branching arguments about how much liberty filmmakers are allowed to take with source material, and about how changing this one thing here completely destroys the narrative from the book. I've witnessed a fair share of these discussions, heck-- participated in more than a few myself. But what if there is no canonical narrative? What if the world is splintered into a million versions of the story? I so wanted them to get it right. And suddenly, just on the precipice of watching the movie, I realized that "getting it right" was a lot to ask. Because what I was actually asking for was for them to have gotten it right for me, for how I see the world, for how I experienced my son's death. There's a lot of us out there. And while there are the bits of living with your child(ren)'s death(s) that I'd describe as classic hits, there are also parts that are far less universal. 

I realized that I both wanted the movie to be good and needed it to be good-- after all, my son's name is literally attached to it.  That is a combustible mixture, and sitting on it was making me apprehensive. Because what if it isn't good? What if going forward I wouldn't be able to refer an asshat to that movie for clarification? What if, instead, an asshat would be able to use it as ammunition? 

Knowing that we were going to watch the movie, Monkey asked me to pause the screen at the end with her brother's name on it. The next morning I turned the TV on for her to see. As she studied the screen, she asked whether the movie was good. I skipped a beat, unsure how to answer. 

Because here's the thing. Minnie Driver is impossibly great. She had perfect pitch, hitting the exact right note with her face and her body every millisecond she was on screen. Bewilderment, anger, frustration, indignation, determination, indifference, shock, and-- and I have no words for how deeply I appreciate that she could play this so exactly right-- the hollowing grief. Twice during the movie I made JD chuckle by yelling out "Fuck you, lady!" a beat before Minnie's character delivered a more dignified and more appropriate retort. The plot of the movie doesn't exactly match our story, relationships in the movie are not exactly like the ones in our extended family. But the cast is great and they get at the emotional truths of the life after so well that the context in which they operate doesn't much matter.

Except for this one thing, one scene really. The scene that goes straight to the million fractured versions of the story issue. See, one of the foundational views of my life after is that for me there is absolutely nothing in the plus column of A's death. I was already a pretty kick ass mother, and I certainly didn't get to be "more available" to my living children, either the one who was already here when A died or the two who came after, because he died.

If I was to name one good thing that I found in the after-space that I wouldn't have had if A lived, without a doubt I would name the community of babylost parents. The people I met online and in person in those first desperate months, and who are still my friends now, seven years on. This community at large. It sucks that we are here, AND I am glad to know you. But that's me. And I didn't make the movie, writer-director Sean Hannish did. And I get that the scene represents a true and important understanding in his narrative.

I told Monkey that the movie was good, that I only had one real issue with it, and for a movie on this sensitive a subject only having one issue is not bad at all. Fortunately for me, I don't see the character who articulates this view as central to the narrative, and I certainly don't think the scene is. When my DVD arrives, I will skip over that scene. Julia's cut, if you will.

 

Had you heard about the movie before it aired? Did you see it? What did you think? 

More generally, have you ever had to render judgement on a project that hit close to home, whether in the babylost realm or not? How did you feel going in? How did it turn out? 

Attitude-shamtitude

I've thought about writing some version of this post many-many times over the years. The post where I'd let go and let fly about just how much I dislike-- scratch that-- how much I hate positive thinking. Because oh yes, I do. In my imaginary post, I'd rage on about how insidious the movement is, essentially blaming those who end up in unhappy circumstances for their own fate. Negative emotions, the story goes, cause bad things to happen. Staying positive, usually with the help of some set of specified exercises, will bring you all the good things you need. Money, health, everything. Bulltshit! A pile of crap. A big, stinking pile of crap.

And it stinks worse every time you try to poke a stick at it to see whether it really is a pile of solid crap, or whether maybe there's some substance mixed in or buried underneath. Because really, from where I sit, to tell people struggling with cancer and the effects of cancer treatments, or people in tough economic circumstances, or people-- let's just say, entirely hypothetically-- grieving their dead child that they "have to stay positive," to have the gall to tell people how they should deal with their own physical and mental anguish, well, one must be high. Perhaps on the noxious vapors from that giant pile of crap. Have to? You don't say! Because what? Puking ones guts out is supposed to be fun? Or enlightening? Or because worrying about making rent or having enough to feed one's family is just silly? Or because continuing to grieve is what? Preventing us from "moving forward"? Oh, I see-- because if you don't, you might succumb to the disease, make your economic matters worse, or not get to have another child (because remember-- children, much like purses, are fungible). Only if you stay positive will you recover, improve your money situation, or bring home that bundle of joy. Bullshit! And also? Insidious and just plain mean. 

And, unfortunately, all too common. It wears many hats, sometimes technicolor bright, making it impossible to miss what it's all about. "I ate right and exercised all through my pregnancy" it proclaims loudly on the playground, "I only gained 20 pounds, and labor was this transcendent experience, and he is just the healthiest baby I've ever known!" And sometimes it's a lot more subtle, whispering doubts into our fragile souls-- "maybe he died because I didn't want him enough," "maybe it's because I ate sushi," or "maybe I was so worried about having to take time off from work that I caused this to happen." No, no you didn't. (You know you didn't, right? Our thoughts don't make things happen. Not good things, and not bad things. You didn't cause this.)

So you know what? I hate positive thinking. Not only for what it does to the vulnerable people directly, but also for what it does to the social fabric that surrounds them (us). For some mind-bending examples of finding oneself in an environment where such thinking is normalized and even promoted you really can't beat Barbara Ehrenreich's 2009 book Bright-sided. The book was prompted by and starts with Ehrenreich's own experience of getting breast cancer and suddenly finding herself in the "pink ribbon culture," where there really isn't a word for a woman who never made it to "survivor" or has fallen off that wagon, so to speak, where "[w]hat does not destroy you.... makes you a spunkier, more evolved sort of a person." and where the book titles such as The Gift of Cancer: A Call to Awakening do not raise an eyebrow.  And what if you don't want to sing an ode to breast cancer, either because you see it as a disease that took a significant physical and psychological toll, or because you yourself are not and will not be a "survivor"? Well, then, you're doing it wrong.

Bright-sided came out when I was barely two years out from A's death and somewhat acutely sensitive to the positive thinking bullshit that kept popping up all around me. So I cheered the masterful takedowns of the individual piles of crappola, starting with the world of breast cancer and going wider and deeper. I found the history lesson on the roots of positive thinking in America to be fascinating. I found tracing of the role of positive thinking in bringing about the financial crash of 2008 fascinating too-- in a way that watching a slow-motion replay of a test car crashes is fascinating (except, of course, it wasn't dummies being crumpled by the financial crash). The chapter I thought at the time was the weakest in the book was the one on positive psychology.

I went back this week to re-read that chapter (and re-skim the rest of the book). This time it seemed less removed from the rest of the book, less like it was picking on an individual human with somewhat obvious character flaws, that person being the then-President of the American Psychological Association Martin Seligman. This time the chapter seemed downright prescient, much like that kid who pointed out the fairly profound lack of layers that a certain monarch was employing in his wardrobe. Prescient of what, say you, and why reread the chapter? Glad you asked.

Recently a friend pointed me to an article (which contained a link to another article on the same subject, this one much shorter) about a recent takedown by an unlikely band of takers-of-no-shit of something of a centerpiece of the discipline of positive psychology, advancing which Martin Seligman has made the defining mission of his tenure as the President of APA. What takers-of-no-shit took down was a seemingly super-important paper, published in 2005 and since referenced over 350 times, including in popular psychology books by one of the paper's authors, Barbara Fredrickson, a star of positive psychology if there ever was one, and by Seligman himself. The paper, see, claimed to have found a ratio of positive to negative statements or emotions that separates "flourishing" people and groups from "languishing" ones. The ratio was supposed to be, I shit you not, a straight up exact number. 2.91013:1.

You know what that ratio and the whole bloody cottage industry that grew up around it turned out to be? If you guessed crap-encrusted filet of crap with crap demi-glaze and some whipped crap on the side, you are absolutely correct. It was fake. A stopped clock derived from fudged messing around with equations of certain aspects of fluid mechanics. The paper that took it down was called in the original manuscript "The Complex Dynamics of an Intellectual Imposture." Sadly, the authors changed it to "The Complex Dynamics of Wishful Thinking" before publication to step on less academic toes.

The person who first smelled the crap, and who was able to claw his way through enough complicated math to determine that the number was fake, is my new personal hero, Nick Brown, a then-50 year old master's student of the University of East London where he was studying, wait for it-- applied positive psychology. Yeah, he was paying money to study this stuff. And he is not the only one. Martin Seligman runs a one year program at UPenn that costs nearly nothing to attend, chump change really, a mere 45 grand. Yup, for one year. He is also at the heart of a project with the Army that is running United States taxpayers a cool $125 million plus, though it seems to have done nothing to reduce PTSD-- a prominent goal of the thing.

It bothers me to no end when science and math are misused. It undermines public confidence in the whole enterprise, making it harder for good research to be taken seriously. I've talked to my students many times about examples of bad research or bad reporting of research (or both at the same time). And more often than not I find that as I talk about these things my voice starts to shake. It's not nerves-- it's indignation. I guess I am still enough of a science idealist to think that doing research the right way really-really matters. And in this particular case, holy crap does this burn me! This is not a victimless little fudge, a small shading of data to advance one's career. This has real consequences for real people-- it spreads the reach of mandatorily bright-sided environment, making it more likely that more people will be told by some positive psychology devotee somewhere that they need to adjust their attitudes. You know, find 2.9103 positive emotions to counterweigh the bummer of their kid still being dead. And isn't that the kind of advice we all need more of in our lives?

 

This is my opinion. What's yours? Tell us, please.

Oh, and by the way, the articles I linked above are well worth the read. Enjoy!