Mamas of lost babies and potential of all kinds: come here to share the technicolour, the vividness, the despair, the heart-broken-open, the compassion we learn for others, having been through this mess — and see it reflected back at you, acknowledged, understood.
It was kind of interesting reading the dads stuff..but my husband is now so angry about hospitals and mistrusting of them... I don't know.
I have all of Aeryn's records, but it makes me sad because there are really only about 4 pages. Then receipt for cremation. Still no birth certificate or anything. I went to the hospital and got her APGAR score sheet - sad because they didn't even fill it out all the way, didn't bother to record her weight or anything on it because everyone knew going in she wasn't going to make it.
I know for me, my daughter was nothing but a medical case. That was her personality, so to speak -- it's all I know of her. And so I occasionally leaf through her pathology report, because in some sense it gets me closer to knowing her, and reminds me that she wasn't a figure of my imagination. Ours provided no answers. Only an infinite amount of wild questions.
I'm so sorry.
After reading your post I went and opened my memory chest. I found my son's hospital records along with mine.
If I could say anything to you it would be to keep them. I didn't have much time with my son and any little bit of physical evidence that he was here is precious to me.
It sounds like there are so many records for you to pick up. Maybe you could someone in your family to hold them in a safe place in their home for you, if you don't want them in your house right now.
I hope you find all of these comments helpful :)
Thinking of you
Carly x
I did get his autopsy report. The one that confirmed he was perfect genetically, but lacking in lungs due to severe lack of amniotic fluid. And a ton of other medical terminology. I needed that document, as a final proof of what happened and why it happened. I needed to know that I did make a perfect baby, but it was just my body that broke.
I'd never get rid of that report. And if I get the rest of the documents, I'll keep those forever too. Sometimes, I am afraid that I start to forget. I hate not being able to remember every detail. In having something to read back over, I can open it all back up and make sure I remember him. It's somewhat painful, but it's better than numb.
Full disclosure: the process of getting them was a little rough. Because Oliver was never "alive" in the hospital, he has no separate medical record number. You can imagine (or maybe you know) how the conversation went with the medical record clerk (English was not her first language) when I asked for copies of an autopsy that was filed with my medical record.
Her: you cannot have an autopsy, you are not dead.
Me: no, the autopsy is not of me, it's of my son.
Her: what is his name and birthdate.
Me: Oliver T., April 3rd 2008.
Her: We have no record of that patient.
Me: Yes, I know
I eventually convinced her just to copy everything filed under my name and send it to me. I wanted it to have, to make him real, and I wanted it to read before my first appointment with my new obstetrician. I believe my conversation with her was much more honest and helpful because we had read the same words.
I admit that I was also looking for clues, and I found them. I understand what happened better, and I feel more confident about guarding against it in another pregnancy. That peace alone was worth the pain of getting and reading those pages.
I just got them last week and I keep pouring over them like I'm going to uncover some new fact about what went wrong.
I also have the NICU records from my twins. It's a 3-4 inch stack of paper that has been safely boxed away. I did them same thing 4 years ago that I'm doing now - obsessing - though that story had a better ending.