Battle fatigue

We waited for seven months after George’s death before we started to try and get pregnant again.  It felt much too soon to me at the time, as if by trying to have another child we were somehow betraying our firstborn.  If not for fear of the encroaching title of ADVANCED MATERNAL AGE I probably would have insisted upon waiting longer. Fear can be powerful motivation.

If someone had offered me the option of a medically induced coma for the duration of my subsequent pregnancy I would have given it serious consideration.   It wasn’t just the emotional aspect of another pregnancy after a loss and all its possible complications that gave me pause but also the pure physicality of it.   My pregnancy with George was brutal even before things went sideways.  Hyperemesis lasted for nearly twenty-three weeks and then, one week after it resolved, I was in the hospital being pumped with enough cardiac medication to make me long for the days of vomiting only every hour.  Of course, then there were the IVs and the constant blood draws and the headaches and the jabs to my stomach with epidural needles.  By the time I went in for the emergency C-section to deliver our boy I was nearly fifteen pounds lighter than I was before I got pregnant. 

As it turned out I survived the next pregnancy with most of my sanity intact by doing my best impression of an ostrich.  I simply pretended, as long as I could, that none of it was happening.  I assumed that my state of pregnancy was a temporary one and went about my life as if everything was the same as before.  All of those things pregnant people are supposed to do like glow and beam and make plans for nurseries and have baby showers I did none of.  What I did do was take my prenatal vitamin every day, avoided the laundry list of foods and drugs that I was supposed to and I continued to grieve the loss of my son. 

Everyday I was pregnant I fully expected it to be the last.  But somehow my luck held out and after 277 days I gave birth to a living, breathing baby girl.  The moment I held her for the first time the uncertainty of those previous 277 days became completely insignificant.   It all seemed worth it.  I would have chosen to do it all again for twice as long in a single heartbeat.   Perspective is everything and if fear is a powerful motivator than love even more so.

Eighteen months after she was born we looked at our daughter, growing up at the speed of light, and thought that it was time to do it all over again.  She needed a sibling and we needed another baby.   So we took another deep breath, crossed our fingers, and with eyes wide open made that leap of faith. 

It did not come as a shock to me when a few months ago, at 12 weeks, I had a miscarriage.  A routine office visit and an absent heartbeat, it was a scenario I had envisioned happening many times in the years since George’s death.   Then, just last week, a variation of the same story; positive pregnancy test followed by spotting and then heavy bleeding.  An early miscarriage, they say.  Part of me, the part that will be forever in that hospital room holding the still body of my son, will always expect the worst and be surprised when anything other than that happens. 

 

I could rail against the unfairness of it all or shake an angry fist at the universe.  Lord knows I did all that when George died.  I wailed and screamed and cried until I thought I would shrivel into a dried husk.   It was what I needed at the time.  To be angry and indignant was important.  

It has been three and a half years since I began this journey and it has been a battle the entire time.  Four pregnancies later here I am with one son gone away and one amazingly thriving daughter who is currently singing a song about boats.  I don’t feel angry or indignant anymore.  I recognize how lucky I am to have made it this far with one living child.   Yet I still long for another baby and somtimes even dare to dream about a son.  But I’ve grown weary of the battle and wonder when is it time to finally stop fighting.  Is it now?

If you have had more than one loss in what ways has it affected you differently than your first loss?  Was your reaction to it as you expected?  What is/has been your motivation for trying to have another child?  Have you made the decision to not try or to stop trying?  How did you come to that decision?  

raven

I am wearing a pink gown, the opening in the front. I am grateful for that small gift--back openings makes me feel so vulnerable and undignified. There is a paper blanket covering my legs. My shaking hands fumble with the thinness. I tear a hole in the thigh. It is not meant to keep me warm, I remind myself. There is a blood stain on it, already. I lean back on the table. There is a skylight over the stirrups. The rain falls like a war drum, hard, without rhythm, but persistent. The wet leaves cover the bottom of the skylight.

 

Nature keeps falling, water and leaves. Dead things that look alive. I stare at the counter. Purell and ultrasound gel. A pap smear kit, and non-latex gloves. A black bird flies over the building. It looks like a shadow of a happier bird, something predatory, but special. I know the baby is dead before he tells me. I have imagined the baby dead in all the moments I am not actively thinking she might be alive. But I wait for him to say it aloud.

 

The doctor tells me it looks like a miscarriage. I am twelve weeks pregnant, but with the labwork and the bleeding and the ultrasound without a heartbeat, an empty sac, perhaps, the baby is gone, or was never there. A paradox I may never unravel. My uterus growing and believing, even while I am stunted and cynical.

 

The doctor convinces me to go for another ultrasound because of the trauma of Lucy's death. He thinks I should see there is no heartbeat again. He said, "Just so you know, deep within you, that we did not make a mistake." And I tell him steadily without tears in my voice that I held my dead baby and I still thought it was a mistake. Her skin was torn and growing colder, and I thought she would live again. I thought there was some system-wide error, that she could still come back, if someone did something other than mourn. I thought I could puff my lungs up, cover her nose and lips, and breathe life back into her, as though the doctors and nurses hadn't quite thought of that yet. "She just needs some air," I wanted to explain. "We just need to remind her to breathe."

 

Sometimes I still think that perhaps we cremated her too soon.

 

I watched a hawk chase a raven, diving and attacking. It was a spectacular show above us as we hiked through the woods to a waterfall. We all stopped and gawked. I bent over in the first bangs of unbearable cramping. The ravens have been around me all this month, waiting for the death in me to escape. The ravens swoop low, cross in front of my car, reminding me that I can lose once, lose twice, I could lose them all. It has been an unkindness of omens--dead baby birds on my front steps and ravens, stopping me in the street, daring me to hit them. Maybe I should call the nevermore baby, Raven, the blackness, the hole within me.

 

I received an email just as I began bleeding. "Your life is beautiful, so beautiful now. Do you appreciate it? I think you do. I appreciate it, but I can't bear it. I have to look away. It is painful how beautiful it is." It is beautiful, even though our daughter died. I made something else out of her death--a life I always wanted to live. I understand if someone can't bear it. Joy reminds me of grief too. Happy reminds me of sad. And besides, two children is something, I get that. Two living children cover the holes where the others were. You'd never notice if you didn't search for the spaces where others were supposed to be, if you didn't read our stances and our smiles. It would be hard not to believe the lies we are telling in our photographed smiles. My dead outnumber my living now, but still two children is not all of your children dead. I do appreciate it.

 

What I wanted to say, though, is that we still suffer. We have a beautiful life, but we still suffer.

 

They search my womb and they don't find the baby. The technician says the baby is dead, even though she is not supposed to say it aloud. Words I needed to hear. In moments, I begin the process of miscarriage, passing clots and tissue. As though my body was holding onto her, until someone could speak the truth that she died. The little dot inside of me that was growing once is gone now. The children would ask me how big she is every day. And I would tell them the size of an olive, the size of a lime, the size of a peach. But she was no size, just my womb grew, making space for an unkindness. She is an empty space now. A hole of what could have been.

 

I thought I could slip under the radar with one more quick baby, like Fate could turn her attention somewhere else for a quick nine months. "The last time. The only time. One chance," I said to my husband. "One more chance at one more child, then nevermore."

 

photo by Brian Auer.

I know what I know and I still got baby greedy. I still thought somewhere in me that things would end differently. I am not ranking my sadness, but this is a small grief compared to Lucy. Lucy died, and I held her. I felt like I knew her, she was in my womb for 38 weeks nary a thought of life without her. I never imagined her dead in those 38 weeks. But my little raven died and I only ever imagined her dead. (It didn't help the pain.) 

 

Perching on the fence in my backyard, like the raven, Grief waits for the physical pain to subside to invite himself into our home again. I reacquaint with Grief, another stodgy old raven wearing black. He is silent, never flitting, still is sitting, still is sitting, sitting by my office door, whispering, "Nevermore."

 

 

Have you experienced a miscarriage before or after your loss? How did the grief differ? How was it the same? Did the expectation of loss help with the reality of it? If you have only suffered from one loss or none, how do you abide with others in this community who suffer from multiple losses, or who have not suffered from multiple losses? How do you feel Grief stalks you? Like a raven or a hawk?

What It Feels Like To Almost Have A Child After Losing A Child

Two weeks from today, on May 7, around 12:30pm in Los Angeles, we are scheduled to meet our third child, a boy, who if anything like his older sisters, will be long and thick and blue eyed and full of hair.

We have a name picked out for him. We have a few things ready for his arrival; an old car seat, some hand me down articles of clothing, an aqua colored swaddle blanket and a scattering of other necessities, like baby soap and a sealed bottle of whiskey. Barring any unforeseen calamity or early entrance, he will come into the world after spending thirty-eight and a half weeks inside his Mother, the same amount of time his sister spent in utero before dying.

Seventy-five weeks of pregnancy has come down to this.

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We are dancing more and more these days. My three year old and I run around the house singing wildly off key to the vibrations of Florence + The Machine, cranking the volume during the “loud parts,” as Stella refers to them, and pumping our fists and spinning in circles and group dancing with Momma, which involves an awkward three person and one belly swaying hug.

We have been doing this sort of tribal dance ever since Margot died. It was always a brief respite from the agonizing grief, a tangible way for us to contrast the sadness surrounding Stella’s life with some joy. But something feels different now. As the song ends and we throw ourselves onto the couch in exhaustion, the sadness that once lingered after the dancing is now replaced with anticipation, the light at the end of another long pregnancy tunnel, the hopeful gift of a son, out of the ashes of his sister.

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I have been growing a beard since we entered the third trimester because I don’t know what else to do for my son in utero, because it’s the only outward sign of hope I can think of, because the simple act of not shaving feels like something I have control over. It is thick and black and surprisingly vigorous after two months. And it’s mostly awful looking, something my partner says “doesn’t look bad or good.” But it’s there, growing simultaneously with my son, exuding love and hope every time I pick food out of my mustache or my daughter yanks at it in laughter or I itch it at work or gently pull at it while I’m thinking or reading.

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Thirteen months and one day ago, as my partner bled and bled with no clots in sight, we were twenty minutes away from a hysterectomy.

Thirty-six and a half weeks ago we got lucky, damn lucky, that the cells of a tiny egg and a tiny sperm entered into a union that has, up to this point, stayed the course. There is gratefulness in abundance.



Mostly though, there is this inescapable feeling like our lives are hanging in the balance, like we’re standing on the edge of a cliff, overlooking a rugged coastline, waiting to be pulled back or kicked off the ledge.

I don’t know how we could go through this again.

I really, really, don’t know how we could go through this again.  

It’s damn near impossible to keep myself from looking over the cliff, from imagining the free fall should this little boy not make it. The fear, which introduced itself early on in the pregnancy, as if on cue, has successfully set up iron gates around my hopeful heart, holding me in a perpetual state of doubt, my gaze nearly fixed on the rocky coastline below. The emergency run to labor and delivery at thirty weeks didn’t help. Nor have the poor non-stress numbers, the abnormal blood work, or the two dozen times we had to get the doppler out to see if he was still alive. The only relief from the fear and worry is that it’s persistence has become commonplace.

And then there is the hope. Hope that this baby will live, and keep living. Hope that I will hold him in my arms and look into his eyes and tell him that he is my favorite boy in all the world. Hope that I will get to introduce my three year old to her live sibling, to see the two of them together, a dream of such vivid beauty I can hardly even think about it.

Hope that in two weeks time, we will pick up what’s left of ourselves, step back from the cliff, turn around and walk back towards home.

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If you have had a subsequent pregnancy, what was your experience like? If you haven’t had a subsequent pregnancy, how does it feel to read about other members of the baby loss community who are pregnant? Is it hopeful? Diffiicult?

tempting fate

Sometimes, when I am holding my husband in bed, I worry that lightning will strike us. In those moments when we are so intensely in love, so happy together—still, despite our loss—I think we are asking for trouble. I expect a tree limb to crash through the roof of our bedroom right then. I picture a horrible cancer suddenly taking hold of one of our organs just as I am kissing him. It scares me. So I end the kiss, I pull away, thinking crazily that this might save our lives.

The same terror runs through my body sometimes when we put Lilly to bed. Will this be the night that the dryer lint catches fire? Will she wake with meningitis in the morning? What if the tree limb falls on her bed instead of ours? What if something happens to Brian, and she is taken away from me?

I love my husband. I love my stepdaughter. I don’t want whoever is running things "up there" to see the unbroken parts of my life, for fear they will be broken too. So I have become superstitious.

photo by winthrowBlythe. That's how I was before the death of my baby. Even having seen my parents’ long and bitter divorce, my own quick and dirty divorce, a series of unsuccessful career starts, a few personal tragedies among those I love, I still felt immune, protected, special. I still didn’t know. You know?

It’s probably for the best that I had my bubble burst. Nothing about my daughter’s death is for anybody’s good, but at some point I did need to come down to earth. To learn suffering, compassion, humility, and my own unspecialness. I hope I am less of a brat now. And moments of happiness have become so dearly precious to me. The people I love, so much more valuable.

I worry that they will be taken away from me. What if this lesson in humility does not have me on my knees enough? (Lessons in humility don’t really make me humble. They make me humiliated, which makes me mad.) What if I haven’t been sufficiently broken yet? What if there is more to "learn"?

Feeling happiness is a dangerous prospect these days. I used to avoid it, because really, who wants any of that when your baby is dead? But it has crept in. It has persisted. If I claim it, will someone see and take it away from me? No, no, that's not for you. Not any more. Should I love in secret, to protect the objects of my affection?

Shining and contented moments used to make me feel in tune with and supported by the Universe. Now I’m not sure the Universe is on my side.  Now when I feel happy, I feel it defiantly. My burning love for my man, my stepdaughter, my gorgeous little nieces and nephews—it hurts. It could break my heart. I think out into space, Please, don’t take them away from me. Or sometimes, Screw you, Fate. We are still here. Then I hush myself. I don't want to attract attention.

Maybe it is safer to pull away from happiness, safer not to chase it.  But this summer my husband and I will don wax wings and try to fly to the sun: we will do IVF. Fate will probably be too tempted by this. We should keep our dreams small and quiet, but I’m angry, as well as scared, and not ready to give in. My wings will likely melt right off. My husband? He thinks we’ll soar, and that’s fine with me as long as he doesn’t say it too loudly and maybe throws a pinch of salt over his shoulder, too.

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What is your relationship to happy moments (or the future prospect of them) these days? Do you have any quirky habits (of thought or action) that help you to cultivate a sense of safety in the world since your loss(es)?

the back nine

When Brian and I were engaged, we used to joke about “the back nine.” Lilly, his daughter who lives with us, was nine years old when we met. Since she would (in theory) leave for college at 18 that gave us nine years of raising her. He called it playing the back nine together.

The back nine also meant the second half of our lives. We were ridiculously, giddily in love, like teenagers in the movies, but aware of our middle-agedness. When we married, the question of more children was on the table, but not well discussed. It was possible that we would simply make a family of three. Later we could launch Lilly into the world and ride off into the sunset—still healthy, only in our 50s, just the two of us.

Little did we know that when I walked down the aisle, I was already knocked up. And then we were so happy at this new plan for our future. And then we were broken.

Over this Christmas break, Lilly went to her mom’s for a week, and Brian and I took a mini-honeymoon at home. We cooked grown-up food, read books in front of the fire, and watched football naked under fleece blankets. We ate on no particular schedule, drove no one to soccer practice, and attended no parent-teacher conferences. For a few days, we looked like a carefree couple with no responsibilities. We looked almost like that original vision of our back nine.

I let myself try it on: the relaxed schedule, the freedom. It was nice. What if we stopped trying for another baby? What if we walked away from the whole IVF project? What if we looked at each other and said, Okay, it’s just you and me? We could do it, you know, we could pull the plug.

Photo by katerha

But I am afraid of becoming a bitter, childless old woman, mired in grief, ruining my husband’s golden years. I almost ruined our little vacation this week. One moment I was saying, “The sun is out, let’s go for a walk!” And three breaths later I said, “The pain of missing her is so bad that I wish someone would hit me with a two-by-four.” How romantic.

Our baby’s death has cheated us out of so many things, including the ability to dream our own future. If we hotly pursue interventions or adoption, I want to do it with my whole heart, not because we got screwed. If we choose to raise no more children, I want to embrace that path fully, and appreciate the time and freedom we would have, instead of always mourning for what could have been. But inevitably that road will be second-best too.

We could have had such a wonderful goddamn life, if she had never come to us (terrible mother!), or if she had never died. I am turning 39 in a few days and feel no peace about the second-best life we’ve been handed. Instead, I feel my advanced maternal age.

I remember a few years back, when I was single, sobbing in my mom’s car outside the Rochester airport. It was a pent-up cry that I’d been holding in for days. My flight was leaving in 45 minutes, and I was holding us hostage, wiping my snotty fingers on her lambskin seat coverings.

I wish I were 45 instead of 35, I wailed. I just want to know already if I’m going to have a family or not. And if not, then I just want to be an old woman. I hate this middle part.

Skip ahead. I now have a wonderful little family, but I still hate the middle part. I want to peek ahead ten years, to find Brian and I deep in that back nine, and to see, is there a new little grade-schooler out there on the greens with us? Or just the two of us holding hands, with a baby in our hearts?

The future doesn’t feel like a choice anymore, only a mystery. There’s nothing for us to do but wait.

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As we enter this new year, what does your future hold? Have any of your dreams and plans for your future remained the intact through your loss(es)? Where does family-building figure in your future plans? If you could magically jump ahead in time to gain perspective on your life, would you do it and to when?