At the kitchen table: on hope

At the kitchen table: on hope

In bereaved parent circles around the world, "finding hope again" seems to be a rallying force, a beacon of light in the darkness, an all but necessity to learning to live on after unthinkable tragedy. Memorial fundraisers and charity walks are built around the concept of hope. One of every two bereaved parent support groups seems to include the word "hope" in the name. For many, hope repels; others latch on intuitively. For this Kitchen Table discussion, we explore how each of us feels about hope in the context of loss(es).

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from the archives: comparatively speaking

This piece is from June 2011 by Tash, on a topic I think never gets old and never goes away. No matter how hard I try to keep comparative thoughts out of my mind, they wriggle their way in. I suspect, as Tash hints at, it's just human nature.

I believe if you got a room full of widows whose husbands had died of the same form of cancer, each woman would still silently compare herself to those around her.

I wish my husband had survived longer after the diagnosis.

Thank goodness my husband went fast and it didn't drag out.

She's lucky, her kids are still young and in the house to lend support.

She's lucky, her kids are grown and she has time and space to grieve by herself. 

I wish I had been married longer.

She's so young -- she's got her whole life ahead of her.  No way I'm getting married again.

And so on.

I also believe, especially early on, that it's a good thing -- it's even a healthy thing -- to compare yourself to others in similar situations.  I think it puts parameters on your grief, and helps set the boundaries of exactly what issues you personally need to move through. 

At first, unsurprisingly, you probably think yourself the worst off in the room -- from newness and the raw angry wound if nothing else.  And that's ok, by dint of still bleeding, you probably are.

But the nice thing about support groups, either in person or online is that you realize you're not alone:  others have gone through the same thing.

Well, not quite the same thing.

And there's the rub:  we're all so alike, we occupy a tidy little corner of the internet where we share macabre humor and toss around familiar euphemisms, but then we hang around long enough and realize there are some odd angles and edges.

Some lose babies earlier in the pregnancy than others

Some lose two children -- or more -- in the same event

Some lose two children -- or more -- over time

Some have to birth already dead babies

Some have to make decisions about life support

Some have to make decisions about termination

Some have seemingly healthy babies who are rudely snatched from their hands -- metaphorically -- weeks after their birth

We ponder these differences, and hell, it doesn't really matter does it?  No of course not, many of us pronounce, pain is pain, and we begin to comprehend still other parts of the stories:

Some don't have living children

Some have to explain what happened to living children and help them grieve, too

Some spouses leave

Some suffer infertility along with babyloss

Some subsequent pregnancies don't work, either

Some had horrible medical treatment

Some have long-standing issues with depression 

Some were still suffering from other losses in their lives when their child(ren) died

And I think it's still good - and still healthy -- to compare, and realize, you know, I'm not the worst-off person in the room.  

And I speak rather ironically because of course, if you're following my examples here, no one is the worst off person.  Everyone is worse off.  Everyone is better off.  It depends to whom you're referring, to whom you're speaking, whose mind you're in.  Are we counting that refugee I just read about in the paper?  It just depends.

I'm not sure whose particular set of circumstances I'd rather have:  they all suck, and at least I'm familiar with mine.

+++

I gather -- for better or worse -- that this sort of self-comparison is probably a chunk of how we form our identities and selves.  Some comparisons are merely factual, some make you gasp in relief, and some perhaps make you feel a little less of yourself.

He's taller than me.

I'm lucky I like my job.

Her skin is always so clear and smooth, and mine looks like the lunar surface.

And it's what we do with this information that's important:  it shouldn't make you feel like you get a prize of some sort just because your car is a newer model, but nor should it take you in the dumps if your neighbor's lawn looks better this year.  It is what it is.

We sometimes bandy this idea around and call it the Pain Olympics, the idea that some play games to set themselves up as the worst, the bottom of the well, the stink of the trash-heap.  

And I still argue it's good and it's healthy as long as at some point in time -- and it usually takes a bit of time for the wound to cease throbbing and your head to stop spinning -- that you realize maybe, just maybe that person had it worse.  And now that I think about it, that person I read about in the paper?  She did to.  And he did.  And her.  

And suddenly you have perspective, and compassion, depth and breadth to your experience.  You're able to welcome someone with a far different set of circumstances, realizing exactly where your circles cross each other in similar shaded places, and where you diverge.  And you also begin to realize that what one person considers lucky, another considers a cosmic kick in the ass.  What one person deems a lousy situation sounds like a symphony to you, comparatively.  

And before long you're beginning to understand not just how your situation fits into the world, but how your pain does.  And that there are other kinds of pain, and maybe "more" and "less"  and "better" and "worse" really aren't good ways to go about comparing these sorts of things, anyway.  That actor who tried to kill himself when he was 22?  His baby didn't die (he didn't have one as far as I could tell), but you know, in his head, his life was so bad he wanted to die.  My life was never that bad.  That was the day I picked my chin up a bit, felt sympathy for this poor guy, and realized I could keep stumbling.

Who are we to judge what's better and worse, anyway?  Maybe my neighbor uses pesticides on that ultra green lawn.  Maybe my newer car gets lousy mileage.  Maybe I just need to be with my situation and deal with it on it's own terms and use other people for support and inspiration when it suits.

That's the problem with comparisons.  You sometimes don't know the backstory, the consequences of the outcomes.  Maybe we shouldn't do this so much, after all.

+++

Way way back, when I took yoga, in the beginning, the teacher reminded us practically every 5 minutes not to be competitive!  Don't look at your neighbor!  Ok, well go ahead and look if you must, but don't get down on yourself!  Because every person is different, every body is different, every student will have a strength and a weakness.  Work on your weaknesses, don't be ashamed to use props.  Revel in your strengths, but know that you can always grow -- the pose can always be better, made more difficult, held longer.

And I realized, in-shape-runner-me, that my soccer-muscly quads that allowed me to sit in air chair for an eternity outright forbade me from bending over and touching my toes, my hamstrings were so tightly wound.  Meanwhile, the 60 year old lady next to me had her head through her legs and was examining the backs of her ankles.

Grief is like this, I've come to realize.  Pain is like this.  It's mine, it's mine to hold and ponder and hold up and examine.  It's mine to improve.  I appreciate your sympathy in my down moments, and I really appreciate it when you find inspiration in my good moments.   

It's not better or worse, it just is.

Some of Tash's original questions: How often do you compare yourself and your story to others?  How does it make you feel overall? Has this changed over time? 

to linger on hot coals: an interview with Catherine Bayly

To Linger on Hot Coals is a book of collected poems by babylost mothers. Edited by Stephanie Paige Cole and Catherine Bayly, it includes the writings of twelve other writers, including Angie Yingst, formerly editor here at Glow, and myself. The book came out in February 2014, and recently I was able to talk with Catherine about the making of the book, writing, and babyloss.

 

Burning Eye: Many babylost parents and writers feel quieter as time goes on, as grief settles. Both you and Stephanie are years out from your losses. Why did you decide to make the book now, so many years later? What was it like to be immersed in a project about loss, so many years after your daughters died?

Catherine: This is a good question, and really distance turned out to be an essential part of the book’s mission and effect, I think. True, Stephanie and I are years out from our losses, and it feels like light-years in some ways. But the writers we included in the book have very diverse chronological and life vantage points. And, of course, we all know that the experience of losing a child never resolves, even if grief “settles,” as you aptly say. So the book served the purpose of showing not quite a trajectory of loss (because there is no such thing) but almost a scatterplot or calculus of loss. And, in that way, the book shows something true that chronological texts can’t quite show, which is the zig-zagging and infinite process of human grief.

So, for us, this dynamic truth (perhaps the sole truth?) was only possible to come to with some distance from our sadness and selves. Because, like anyone, early on, it felt there must be an endpoint, like grief would have to reach some resolution. But, although I am a very happy, well-adjusted person/mother/professional, the real ‘aha’ moment was that there wouldn’t be a resolution, per say. All of it was part of the tapestry. So, for me, it wasn’t like revisiting or dredging up something I didn’t feel anymore—the book was more like a truth-telling that I simply wasn’t capable of before. It was a big picture, only possible with hindsight that I simply couldn’t have had before. And the goal was showing the large picture, seen through the process of reading, rather than an A to Z movement, if that makes sense. It was a peaceful process.

Burning Eye: The role of editor is very different than that of a writer. Why did you want to put together a collection of babyloss poems? Why not just your own?

Catherine: I think the answer to this question is contained in question one to some extent. We wanted to convey an expanse of feeling—we needed to remember or learn what others felt. Although Stephanie and I share a lot, we didn’t know each other when we lost our daughters. We have separate hurts we share with other people we love, and we all have separate, but never wrong, ways we remember. Our individual books, Stephanie’s and mine, would look very different. And this is true of all the authors in the book. To just tell my story is to tell one side of an infinite experience. And we certainly didn’t capture infinity—there was no way we could, and I regret that—but we caught some lightning in a bottle there. And then it’s there for those who want to remember and experience through poetry, and for those who will come after us and who are inevitably different from us and each other. We wanted the book to feel not a bit like a how-to guide, if that makes sense.

Burning Eye: Who did you make this book for? Who do you hope will read it?

Catherine: We wrote this book for those looking to understand the complexity and multifaceted nature of parenting and loss. This could mean parents who are years from their losses, in that limbo between immediate grief and life’s hurtling forward. It could mean allies (grandparents, friends, etc.)—those who want to understand a fuller picture of loss and its repercussions and resonances over the years. There is also some genuinely gorgeous and wonderfully-crafted poetry in the book, so the book has also been enjoyed by poetry readers. Very important to me, also, is the book’s value for a reader who’s experienced any loss. While the subject and experience in question is, of course, specific, I feel that we are writing about an emotion/reality that is essential to the human experience. So the book really puts loss within a genre that is meant to address the depth of human emotion.

Burning Eye: As editors, how did you approach the selection of the poets and the poems?

Catherine: Stephanie and I looked to folks we knew as writers, or writers from venues we knew and respected. Because of her work, Stephanie knew most of the people we queried and led the charge—she’s a leader and I’m a follower, so that was easy!  We did not put out a call, nor did we want to force people to write on this issue. Some people are just called to write about their losses and to share their beautiful writing about those losses. That’s the way some of us remember, and so we asked those we knew who felt that way and were already doing the hard work of writing. That seemed the safest and most ethical way to put together a collection of work. I could, however, have seen the value in calling for poets or pushing for more entries—that certainly would have given the work more diversity and perhaps even more texture. But I am so pleased with the finished book and its feel, and the ambiance of people giving willingly of the most vulnerable parts of themselves.

Burning Eye: What was it like to go back through the things you’ve written over the years in order to choose what you wanted to be in the book? 

Catherine: I have done this frequently, so the poems didn’t come as a shock. But, as a teacher of writing, I have to admit some of the rawness there was a bit embarrassing. And I don’t mean embarrassing like I worry about others’ perceptions of my writing. I mean more that I blushed a bit and longed a bit and cried a bit over that young woman I was. I came to new knowledge about myself. I was so in the moment then, so unable to abstract myself from my feelings, or see the big picture with any distance. It was a strange and humbling thing to go back there and recognize who I was now nearly a decade ago. It is interesting, because I try to teach my students this distance, as if it is possible for everyone, and I take for granted the years and hard work and patience from my loved ones that it took to get here. So, I came away more compassionate and kind—to myself and others.

Burning Eye: I think I understand that in a way, even though I am only two years out from Joseph’s death. Reading back over the pieces I wrote just after Joseph died is hard, not so much embarrassing but more like you said, ‘longing a bit and crying a bit’ over who I was then. I hurt for that woman, for her fresh grief, for how lost and shocked and isolated she felt.

You had a reading and event in the Philadelphia area last March, after the book came out. Why is it important to you to do readings and events in person, as opposed to just online publicity through the book’s website and Facebook site?

Catherine: My answer to this question may surprise you. But I am a very private person. Where, before, I felt or demanded that all people must remember Sophie always, ha, I now relish the near quiet surrounding my relationship with her. In the last year, I’ve gotten off of Facebook, and mostly dug into my work, family, and close friendships. That said, while I haven’t had a reading in a while, some of my most rewarding moments at past wonderful readings have been face-to-face conversations about loss. This gives me a chance to give back to someone who needs it. And, to me, that matters most—those one-on-one interactions with a mother who’s in pain. That’s not to say I haven’t messed those up, but I try my best and I learn more and more how much it matters just to be there for someone in pain.

Burning Eye: I’m a pretty private person, too (I haven’t shared my blog or that I write at Glow with my family or most of my friends). But I’m still in a place where I want people to ask me about Joseph. I want the chance to say his name. I know many babylost parents also want to talk about their babies, and a while back there was a thread on the Glow forums about opportunities to tell our stories. Do you talk about your loss in other arenas? Are you involved in other projects, writing or otherwise, around babyloss?

Catherine: I am not involved in other projects like this right now, although of course I have a select (very) few special people with whom I enjoy discussing Sophie and even saying her name. But I am somewhere different now, as strange as that seems. My ways of memorializing have changed. That need to have people remember is something that has transformed for me over time into a much more personal thing. That solitude is something I struggled with—something I never thought I would be ok with. But now, there is something special in it. Through writing the book, I actually, inadvertently, discovered just how private I’ve become and I’ve come to terms with that.

However, Stephanie, whose emotions of course I can’t speak for, stays involved in many projects in this arena. Stephanie continues to head Sweetpea Project, an organization which supports, guides, and provides remembrance venues for grieving parents. She’s also worked with Pia Dorer on The Sacred Project, and she’s constantly involved in art shows and writing projects. I do know that, like me, Stephanie is somewhere different in her personal life—somewhere much more peaceful—but the nature of her work is much more public and she feels a tremendous and sometimes heavy responsibility to advocate for the loss community. She works hard to stay to in touch with those mothers at all stages of loss—that is a remarkable thing about her. We’re very similar in some ways, but very different in the way we live out our emotions, but I so respect Stephanie for her work, which is so difficult.

Burning Eye: Do you still write about your daughter or your grief?

Catherine: I do not write about grieving Sophie anymore. Because, honestly, “grieving” simply doesn’t describe me anymore. And I hope that gives some people heart, even if it seems strange. I am full of too many feelings and people and roles now to ever say I’m actively grieving my first daughter. She always shows up and lives in many things I do—poems I write, the way I treat my students, the way I see seasons, the way I decorate, etc. But it’s almost never grief over her—just her life as a part of the complexity and story of my life. 

Right now, I have another collection of poems I’ve been very slowly chipping away at. The poems are very different in tone from those in the book—many of those were from my early days of grief. This contains some of that longing, but longing shaped by so many other wonderful and complicated factors.

Burning Eye: I think some of us have the fear that, if we’re not actively grieving, then we’re not remembering our babies. It’s something I’ve struggled with, even as far back as those first few weeks. When I felt happy or at peace for a moment, I felt like I was somehow betraying Joseph. But hearing to you talk about where you are in your grief-journey, it’s getting easier for me to accept that I don’t need necessarily need hold on to the grief part in order to hold on to Joseph.

Thank you so much for talking with me, and for helping to bring into being To Linger on Hot Coals.

 

Catherine will be checking back if you'd like to continue the conversation with her in the comments.

am I okay?

Please help me in welcoming Gretchen to Glow in the Woods. Gretchen writes at Lost Boys and Bearings about the loss of her infant son Zachary, as well as the earlier stillbirth of her son B.W., and the compound grief these two losses have brought her, her husband B, and her living son, C.T. Her writing is raw and honest, and speaks to the stark emotional landscape we wander through in our grief. When I read her writing, I find myself nodding, yes, yes, yes, recognizing some aspect of my own grieving self in each piece. It is this ability to see ourselves in each other--no matter how hard the story may be to read--that helps us stumble through this dark woods to find refuge among the other medusas. Here, we do not feel so alone. We are honored to include Gretchen's voice now among Glow's regular contributors. —Burning Eye

It has been almost fifteen months since Zachary died…, and somehow, eight and a half years since B.W. died.  

My desperate, irrational pleadings for Zachary, for anything but this again, have softened ever so slightly in the last month or so.  My inability to cope with the horrific details of how his health deteriorated so violently and unexpectedly has lulled to quiet missing and mourning and the occasional outburst of anger.  Which is not to be confused with acceptance.  I seem to function pretty well with the very basic, daily tedium of life, especially when I am careful to protect myself from obviously triggering situations.  I allow myself to grieve, often.  I try to keep busy.  I hide or avoid when I need to.  I try not to let the insensitivity and ignorance of others lead me down a path of fury and resentment.   Still, I sometimes fall apart with the reality of his death.

I wonder if I’m doing okay.      

Now, well into this second year after Zachary’s death, the undercurrent of my grief seems to have morphed into a dull, aching feeling of wrongness.  It’s a heaviness that I drag around with me all day, every day.  I hold it up against anything good, anything perceived as important or worthwhile, and then I inspect the combination to see if the net effect is still negative, still meaningless.  As of now, it usually is.  Someone will say something very casual, something like gosh, it’s such a beautiful day today.   I nod and agree, because it’s just not worth it to disagree with such benign small talk, but the words, the sentiments built into the phrase, mean nothing to me.  I still can’t comprehend why or how nice weather should feel good when Zachary is dead. 

Sometimes the unrelenting heaviness feels worse than the initial shock, disbelief and horror - I suppose because it now feels more real and permanent.  Zachary really suffered.  He is really dead and not coming back.  I know it in my bones now and it feels oh so wrong.  I have to live with the flashbacks, the regret and the anger.  He will never again learn and grow and experience the love we have for him.  I will never again have the privilege of witnessing and nurturing his development, of delighting in who he becomes.   People really aren’t going to say his name regularly.  They don’t feel the heaviness; they aren’t tormented by the wrongness.   Their day to day lives were not affected, not permanently damaged, because my son suffered and died. 

I wonder if I will ever learn to really live again, despite his death.    

I don’t know what I need from my support network of family and friends anymore.  It’s apparent that many are tiring of my grief and my need for solitude. They are frustrated that I don’t have the heart to care very much about, or participate in, what’s going on in their lives.  I can feel it.  They rarely ask how I’m doing anymore.  When they do ask, I find that, for a variety of reasons, it’s not usually an ideal time to respond in a way that honors my grief.  I end up having a lot of surface interactions and I’m left wondering if people even still recognize how much I am hurting and just how much we have lost.  On the rare occasion that time and space are intentionally dedicated, and I am able talk about Zachary and my grief, I am well aware that most listeners are going to have a hard time understanding and relating.  When I open up, I see that my words aren’t hitting home, that something, the thing itself most often, is almost completely lost in translation.  They try, and I try, and it continues to be difficult. 

I wonder if I will always feel so alone. 

I’ve been trying to occupy some of my free time with a few new pursuits.  I left my long-time corporate job just before Zachary was born, and now here I am with no real desire to go back to the stressful job I had and no Zachary to take care of during the hours that C.T. is in school.  My mother-in-law and I worked together on a few sewing projects over the course of the last eight weeks, one of which was a valance for my corner kitchen window.  When we installed them, she affirmed over and over again how pretty they looked, what a difference they made in the room.  I was proud of myself for fighting the apathy I feel and following through, but even with her prompting, I had trouble drumming up any real enthusiasm for the final product.  There was a letdown, some strange sadness, about finishing a project for the house that Zachary never came home to. 

I wonder if I will ever be truly passionate about something again.    

I still fantasize about running away from my life, away from the good schools and thriving downtown and family fun and recreation of my Midwestern suburb.  I know it would be impossible to escape my grief, but my new reality just doesn’t fit here anymore.  While other families were dressing in pastels for family photos on Easter, I was despondent, thinking how cruel it would be to ask C.T. to pose for a photo with our two memorial lily plants, his makeshift brothers.  My instinct to “include” B.W. in this kind of holiday photo-op came more easily when it was just one dead brother, but it is just too awful, too much, now that Zachary is dead too.  I don’t know how to tell Zachary’s story, on top of B.W.’s story, amidst the happy-go-lucky who call this place home.  I find that I’m drawn to imagining myself living in a place that is less idyllic, where life is not so nauseatingly easy and wonderful.  If it weren’t for my living son, C.T., by now I probably would have convinced my husband that we need to give up everything we’ve worked for to become aid workers in a third world country. 

I wonder if this sounds crazy.   

*****

I do the best I can to cope with my grief.  At times I’m discouraged, maybe even a little ashamed, at the lack of hope, optimism and enthusiasm I am able to muster, when I compare myself to other bereaved parents I know or read about.   I remember when their narratives, the ones I perceive at least - of rising from the ashes, with some adjusted or renewed form of hope - was more closely aligned with my own.  Now I have lost a whole other son and I’m not finding I am as agile or eager to adapt to a new life again. 

At this point, I just want to know I wouldn’t be characterized as totally beyond repair.

Are you okay? What grief undercurrents exist for you, now? What do you question or wonder about your grief?  

babylost fathers: a special call for submissions

One of the things this community has always been proud of is that we are not just a place for grieving moms. We are here for all babylost parents. Mothers and fathers, birth parents and partners and adoptive parents all come through our cabin door and stay awhile. We find ourselves in a relatively quiet moment here at Glow, with only a few babylost mamas writing, and we'd like to invite more male voices onto our front page. Our intent is to feature the writing of babylost fathers as guest posts throughout the month of June.

If you are a babylost father, even if you don't consider yourself a writer, we encourage you to write about how your loss(es) have affected you--your relationsips, your career, your faith, your outlook, the way you exist in this world. For our submission guidelines, you can look here on the Guest Writer Submissions page, and then you can submit your writing here.